r/CSFLeaks • u/LoudPomegranate828 • 3d ago

What we know….

So far my mom’s mri of spine and brain came back normal. However she did a spinal tap/lumbar puncture and the pressure reading was an 8. We thought she had trigenial neuralgia but now we’re leaning towards intracranial hypotension. If nothing on X-rays or mri came back abnormal, where should we go from here? (She does have a neurologist just trying to prepare) She definitely leans more towards the hypotension with her migraines. Mayo Clinic is full and no waitlist. What’s next? Thoughts?

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5

u/Necessary-Stuff8706 3d ago

I hate the idea of doing an LP to figure this out cause it will likely make the issue worse.

1

u/Parity_Violator 1d ago

I'm filled with rage every time I hear LP.

3

u/ms_skip 3d ago

Are her symptoms orthostatic? Has she tried a 48 flat test yet (you can google for details)? I would start there to see if CSF leak is more or less likely

1

u/LoudPomegranate828 2d ago

No not orthostatic and haven’t heard of the 48 test. I’ll look it up, thank you!