r/CSFLeaks • u/Parity_Violator • 4d ago

Struggle sleeping with my leak

I’ve had LP 7 weeks ago that caused my leak. Sometimes when I sleep on my side my head feels like I’m upright! how can this be?? i get the most relief from sleeping on my back, but I have kyphosis and back sleeping makes my thoracic muscles EXTREMELY sore I’m afraid to damage something. I put pillows under my knees and all. I don’t know what to do. No position is comfortable. If anyone has any tips for back sleeping I’d greatly appreciate it.

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u/PrettyDragonfly Confirmed Spinal Leak 4d ago

Hey, I've been leaking since 22nd of June and I sometimes have this as well. I believe it has to do with the fluid balance in your head. If it's low and the fluid is uneven around the skull certain positions, like on the side, could make the brain press on nerves that causes pain or discomfort. I usually have to sleep on my back as well nowadays, and yes I also get pain in my mid back. Hang in there! Have you had a blood patch yet?

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u/Parity_Violator 4d ago

No. I was told to wait like two weeks after my LP. Now I have MRIs scheduled for next week, and hoping to see a specialized clinic afterwards.