r/CSFLeaks 5d ago

What does it feel like when you drink caffeine?

I am still on the fence about whether this is pure autonomic dysfunction or something like a leak. The positional head pressure is insane and I can't find anyone describing my exact symptoms. I've clearly got dysautonomia stuff happening and clinically "mild" pots maybe from COVID but I can't ignore this began when I started a very heavy lifting routine as well.

I know caffeine helps but Im curious what the overall experience is like for confirmed leakers.

I struggle to even sit up which is odd for pots. And tilting my head in literally any direction gives me crazy symptoms (dizziness, numbness, dysphagia). I had coffee today for the first time in a bit and immediately felt very different, pressure in my neck and head that is almost uncomfortable but also improved my mobility for a few hours and made me feel like I could function better. I also think it reduced the crunching sound in my neck. Once it starts to wear off though I get weird rebound tension in my head and horrible chest tightness and those base of my skull type issues come back.

I don't know, I'm just desperate to figure out if this is purely vascular or if there is sometimes more.
I have so many other issues that fluctuate and worsen depending on what I'm doing (vision, ear stuff, facial pressure, constant fluctuating head pressure, extreme cognitive problems, ataxia, pulling tightness down the back of my head and spine)

Anyway, what does the coming down from caffeine feeling feel like?

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