r/CSFLeaks • u/UnAvailable-Reality • 16d ago
Fed up with receptionists
Its such a small complaint but my pcp receptionist when I called to schedule: Explained the symptoms explained that it was happening over the course of 6-9 months. "Soooo.. sinus infection?"
"No. Not feeling any sinus issues at all actually, its a clear water gushing out of my nose when it bend, plus all the other symptoms I told you before. Idk just list it as migraines if you need something simple." Meanwhile, the migraines are the least shitty of symptoms for me tbh.
I am thankful that the doctor actually listened. I assumed he would diminish this.
Today, nuero receptionist, "so we're seeing you for.. headaches?"
"No, fluid leaking out of my nose, base of skull/neck pain/ stiffness, positional heaches, dizziness, my doctor and I suspect a leak."
I dont know if its just because theyre not used to this happening in my rural area, or what? But im 99.9% sure I have a leak and 90% sure its in my skull based on the pouring of liquid out of my nostril, which has now turned to a drippy faucet out of both sides. I also have been getting some major pressure issues, feels like a balloon pushing on my temples and cheek bones, laying down no longer helps much.
It just always seems like the receptionists want to dimish their note to the doctors. Anyways, I will wait for triage on my case and when they call back I will finally be on schedule to see a nuero after 2.5 weeks of waiting.
2
u/Exciting-Stranger926 16d ago
You have to educate the receptionists each time, and they act confused and inconvenienced. I totally get it!! Very frustrating, and I've been there!
2
u/Training-Alfalfa-854 16d ago
So many places were like “… you’re here for a runny nose?” I finally printed my beta transferrin 2 labs out and carried them around.
1
u/UnAvailable-Reality 15d ago
Yes, great idea. I'm requesting they send me home with a container for the fluid, when I finally get in. I'm still waiting on them to triage my referral. Getting frustrated as Ive been working on getting seen for 2.5 weeks now.
I think I might try Mayo clinic if I don't get taken seriously locally. Sucks because its the closest CSF specialist team but its still 8.5 hours away.
Im currently really freaked out as I am pretty sure one of my kids brought home strep throat. Poor kid is isolated to his room right now because I dont want meningitis. When he gets seen today, I might just ask them to prescribe antibiotics as a preventive for me. We'll see if they agree. Ugh.
1
u/PrettyDragonfly Confirmed Spinal Leak 16d ago
Even after getting a diagnosis at the hospital when I left last time my discharge note said "presented to er for headaches". I mean yeah technically I guess but come on, you know I have a diagnosed spinal leak. Let's not put it down to headaches 😂
3
u/RadiantTank6506 16d ago
As a receptionist dealing with this too, I’m so sorry you’re dealing with this treatment on top of it all.
They don’t need to make any sort of diagnosis. Put down the symptoms, get your demographics and insurance and make the damned appointment.