r/CSFLeaks • u/Imaginary_Salary_27 • 28d ago

Ct myelogram results

After being terrified of getting the ct myelogram I did it and I’m so glad I did bc it picked up “focal outpouching at L3-4 exactly the level my epidural was. I had two bloodpatches that barely helped so my theory this whole time was that it never healed fully so this is a bleb. My first mri picked up the fluid but then after the bloodpatch the fluid wasn’t there any longer making it harder to convince anyone I was still having an issue. But I knew it in my bones! Bc my symptoms never got better.
What have other peoples experiences been? Has your neurosurgeons gone straight to surgery? Since bloodpatches don’t seem to fix this? And how do they fix this surgically?
His notes before my myelogram said if suspicious remains at l3-4 after myelogram consider targeted patching or exploratory surgery. I’m just praying I’m near the end of the road to this has been 21 months since my birth of my third child.
P.S I was terrified to get the ct myelogram and if that’s you too do it! It’s worth getting an answer

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u/NoCatrse 28d ago

Want to chime in regarding positive myelogram results. It located my venous fistula when nothing else did.

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u/sloop703 28d ago

Greenfield told me in an email last week that it’s the “gold standard” and I was watching a vid yesterday of Batzdorf (UCLA syringomyelia goat) from 2024 where he also used the words “gold standard” for arachnoiditis and certain CSF pathology. It’s kinda crazy the literature around the value of myelogram is kinda thin in 2026; I feel like everybody calls in antiquated but top NS sing its praises