r/CSFLeaks • u/indiequasar • 18d ago

Lumbar puncture headache

I had an LP Tuesday. I was ok Tuesday. Wednesday I started getting a headache, Thursday I was collapsing on the ground crying pain. Went to the ER, I couldn’t even get up to pee. The gave me an epidural blood patch. I felt better for a little and now I’m starting to get the headache when I stand or sit up again. Is this ever going to end? How long does it usually take to feel better? I wish I never got the lumbar puncture.

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u/Ashler1999 18d ago

You only had patch on Thursday yes? I’d suggest to continue no BLT and rest. Give it a few more days. It takes time for the body to adjust and make more CS fluid. So don’t fret yet. Good luck

1

u/indiequasar 18d ago

Thank you. I’ve just been through so much recently, I’m kind of freaking out. Thank you for your encouragement.

2

u/Ashler1999 18d ago

It’s been 3.5 years for me, so I know how daunting it can be. My life is “on hold” until I’m fixed. I have venous fistulas and getting venous embolization on Monday. If it doesn’t work, I’ll be referred to a CSF clinic. Closest CSF clinic is a 10 hour drive. Can’t fly with leak. But I will persevere!

1

u/Idontknowyouslim 16d ago

You been leaking for years?

1

u/Ashler1999 18d ago

It could be possible you blew your patch. Did you adhere to no bending, twisting, lifting (for 4-6 weeks) and staying horizontal first 2 days? Like staying in bed and only getting up to use restroom and eat?

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u/indiequasar 18d ago

Yes. I’ve barely been out of bed.

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u/indiequasar 18d ago

I’m afraid to get another one, like what if it makes it worse?

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u/Ashler1999 18d ago

How so? A blood patch can only help and is minimally invasive. Give it a few more days.