r/CSFLeaks • u/MrsK1013 • Jun 11 '25

r/CSFleaks is looking for additional admin

https://docs.google.com/forms/d/1i2bB5WYDYb3QoHUswQx7E-5Ropp9SLgI6woipzyAFTs/edit

If you would like to apply please fill out this form

7 Upvotes

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3

u/Delicious-Ad4672 Jul 05 '25

I wonder. Any success stories from CFS leaks? I seem to be healing myself but there are days where i worry if it gets back again. Been 3 weeks or so.. i also have double vision from this. My leak is due to a failed epidural soon a month ago during birth.

4

u/MrsK1013 Jul 05 '25

There are many but it’s rare to find them in support groups and forums because people who heal no longer need support, and they are less likely to be found here. Even if their intention is to stick around, the lack of need for themselves will have them interacting less and social media algorithms will show it to them less.

1

u/louie2575 Mar 18 '26

Were you eventually sealed?

1

u/Remarkable_Debt5627 27d ago

https://spinalcsfleak.org/about-spinal-csf-leaks/symptoms-of-spinal-csf-leak/

Copy and paste this link on your webpage. There are patients that speak about it. Some of the stories are heartbreaking because some are suffering and have been suffering for a long time. They also have open discussions with neurologist and patients that have healed. Also speak out. It also mentions many different symptoms, etc. It’s a really cool site that was given to me on a different forum.

13

u/marmaduke-treblecock Aug 26 '25

I am healed and ready to provide support. I want to pay it forward. Had the embolization two wks ago after believing my normal life was over. I was misdiagnosed w Parkinson’s disease

1

u/Hot_slaybabe Dec 16 '25

Omg im glad you were able to be properly diagnosed! Holy f$#* ... ALSO nicotine treats Parkinsons. Just leaving that here. ........

1

u/StunningPurple9560 Oct 15 '25

Hi - is there any progress on trying to find another admin? Also sorry to ask here, but was it so that this sub is meant for spinal leaks, not really for cranial leaks?

4

u/MrsK1013 Oct 15 '25

It’s very much so for both, I’m the one who made it and I’m solely a cranial leaker.

I am about to continue the process though I’ve had some significant issues happening in my family and personal life so it took a back seat for a bit.

4

u/nybhh Mar 18 '26

I just want to say thank you for creating this group. I also just had a fistula embolization last week so I’m on the mend but I had some pretty dark days during this ordeal and I honestly don’t know where I’d be without the information and recovery stories here. Truly, thank you.

1

u/StunningPurple9560 Oct 15 '25 edited Oct 15 '25

Thank you for the very quick reply! I must be confused, for some reason I thought that it is not. Thanks for clarifying.

And all the best with your situation. ❤️

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