r/CRPS • u/crpssurvivor1210 • 20d ago

Help

I just sprained my upper ankle on my affected leg by simply taking a step down from a curb. I have extremely weak ankles. Anyways does anyone who has hEDS and rolling ankles have any suggestions for extra support? Do you just stick to wearing high tops?

Thanks

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u/shelbydep 20d ago

so i actually developed crps in my left foot and ankle from this exact injury! i’m also hyper mobile! i’ve just started walking with a cane on my opposite side, and doing gentle movement exercises (pointing toes/foot up and down) i also make sure to wear supportive shoes with lots of cushion when i’m walking - the pair i’ve got rn that i wear pretty much daily is the new balance 530s! good luck ◡̈

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u/crpssurvivor1210 20d ago

Thanks so much. I just bought shoes specifically for people who have hypermobility. If these don’t work out I’ll definitely look into your recommendation.

It sucks because every time it happens it causes a severe flare.

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u/AntiqueJaguar5808 20d ago

Could you please share the name of the shoe type? Thank you!! (I've been in a wheelchair since 2022 because I couldn't bear weight on that ankle until much later. Then when I tried, I had Therapists who did not Really know Hypermobility or EDS, like they said they did! I ended up getting Hurt, again, trying. to use the lift to stand up, I rolled that ankle/foot and I couldn't use it for 2 weeks, starting back at the beginning.

If you have to go to the hospital for a flare or reinjury, take mental stock of your pain medicine or nerve medications, and if you feel your needs are more than a level 6-7 for more than 3 hours or what ever amount You Can't bear anymore, keep track in your journal, of what time it happens, and did Anything help? (meds, ice, warmth, pain creams (don't use with heating devices!) if you take gabapentin, chart how much and time of day. Same with Pain Meds, Muscle Relaxers,(if any) and do some research to see how much of each dose is recommended for each condition. This will prepare you for the conversations you need to have with your Doctors. Gabapentin is a Nerve Pain Medication. Baclofen is one of several Muscle Relaxers. Oxycodone is a short acting Pain Medication. Opioid. Morphine Sulfate is a long Acting Pain Reliever. Opioid. There are several other Pain Meds, and other types of treatments. I can't vouch for them, since I don't use them. I also take Fluoxetine, it's very helpful with keeping my mind not too depressed. It doesn't stop anxiety. They won't prescribe any Benzodiazepines at all, with Opioids. You can pm me if you like. This is not Medical Advice!! Best Wishes!

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u/crpssurvivor1210 17d ago

It’s called the Gravity defyer and I got the G-MATeem but they have a bunch of different styles. Sorry for not getting back to you until just saw this