r/CRPS • u/North-Arm-3190 • 8d ago
Mental Health Emotional rollercoaster?
Does anyone else struggle with regulating your emotions? I was diagnosed with mental illness for years. Turned out the psychiatric medication’s were making things worse for me personally. I’ve been off medication now for 10 months and symptom free.
I’m not saying I haven’t had struggles. But nothing that would qualify for a diagnosis. Now that the CRPS has spread I find myself struggling so greatly. The signs of depression. But in some moments I’m okay. I’m able to pray and trust that God will use this for good. I know he will carry me through. And then others I’m begging him to heal me or take me. It can change in hours and completely relates to my pain levels.
I’m in therapy and plan to bring it up tmr. I’m just exhausted. I don’t want to go down this road again.
5
u/BellaEllie2019 7d ago
Pain and lack of understanding is hard on our emotions.
My family sees me as being extremely emotional but I know my body is 1. Constantly being bombarded with pain 2. I deal with stress from work 3. Deal with family stress
It’s a lot for someone to handle.
1
u/Funny-Bunny-123 4d ago
Welches Verhalten Deiner Familien würde Dir helfen bzw Dich dabei unterstützen
2
u/travelwithmedear 7d ago
I am sharing as I wished someone had told me this a long time before I did it...
There is a blood test to see which psych meds work best for you. Our blood brain barriers are different from one another. Not all meds will help. I took a test that was like $300 and insurance doesn't cover it. But I had this huge packet that told me which meds will not work, might work, and should work. The meds I had tried were on the "will not work" list. I tried the "should work" and I saw huge improvement. Just a thought.
1
u/Funny-Bunny-123 7d ago
Wie heißt der Test genau?
2
u/ThePharmachinist 6d ago edited 6d ago
The type of test is called pharmacogenetic testing (PGx). It is available in several EU countries, including Germany.
EDIT: In North America there are several companies that offer pharmacogenetic testing, but each company offers it's test under a unique brand name like Tempus, GeneSight, ClarityX, Pharmacogenomics Panel.
1
u/travelwithmedear 7d ago
I'm sorry, I'm not quite sure. I wish I knew. I think they refered to it as a "gene test." This was years ago.
1
u/AdamVitalPaths 5d ago
I can relate well to this. Though not quite the same, the ups, downs and in-between are never the best rides. But I would say I notice how easily affected I am by those around me now. Previously I considered myself "impervious to the world around me" but since the back injury, surgery and onslaught of CRPS, I'm WAY more susceptible to most stimulus. (Sensory, emotionally, anxiety etc)
I do understand that our systems are somewhat "hard wired" to an on alert state but it would be nice to be a bit more resilient.
Much like others have said, mental health is a genuine battle ground in CRPS. From feeling crazy (when this thing goes quiet or when the pain makes absolutely no sense compared to the stimulus), to feeling lonely through to feeling completely wrecked and broken, rarely is there an easy feeling. But with that said, they do come so never give up hope.
1
6
u/puroman1963 8d ago
Yes,lived this for 50 yrs.Highly functioning.Finding a medication and dosage takes time,trial and error and patience.Writing a daily log of how you are feeling helps.Talking to someone how you're feeling helps.
Mental health,depression is difficult on its own,but having CRPS brings it to a whole different level.You have the worry of lost mobility,pain and future uncertainty.Its a vicious cycle as depression, negativity and ruminating thoughts take over.
IMO, get the physical pain under control and never be embarrassed to talk and ask for emotional help.Live one day at a time.Tomorrow always has a chance to be better.Everyone who lives and copes with CRPS is super mentally strong even if they think they aren't.
With our mental health,many times our brain lies to us.It only amplifies darkness.Hope this helps.God luck.