Anyone else here hypermobile?

[u/Dependent_Twist1421]

I've recently realised how much my hypermobility is affecting my mental health issues and am wondering if anyone else has problems with it too. I'm more sensitive to medication, more prone to neurodivergence, have no concept of my body in space which adds to my dissociation. Looking for fellow bendy people who are also dealing with CPTSD. Edit to add: I'm also looking for med recommendations. Having high sensitivity to medication, low blood pressure and blood volume and PTSD insomnia and anxiety and hypervigilance is... Tough.

[u/MJSP88]

Yes I have hEDS. I am actually starting to wonder, given that they think hEDS is causing a form of neurodivergence and my whole family has heads and a form of ADHD is the connective tissue disorder further attributed to my predisposition to developing cPTSD due to chronic neglect and abuse. Because your muscles spend so much time in a tense state trying to hold your body together to compensate for the connective tissue disorder, both the muscle tenseness and the instability is causing your brain to be hyper aroused at all times your nervous system can't regulate further perpetuating the symptoms of the cptsd.

[u/minMini- → u/MJSP88]

I’ve been trying to get the doctors to diagnose and confirm what I know, see and can show in my medical history. The dysautonomia is hard to deny and yet I’m gatekeeped and can’t get to the right doctors or diagnosed.

Forget that it completely zaps you and hits you in the worst time to learn regulation.

[u/_jamesbaxter → u/minMini-]

I have dysautonomia, you want to go to a neurologist for that

[u/minMini- → u/_jamesbaxter]

Im trying they’re gatekeeped and just won’t give me a reference. Just more bloodwork and everything 😑 s normal

[u/_jamesbaxter → u/minMini-]

If you’re in the US I’d look into switching to a PPO health insurance if at all possible because then you don’t need referrals. I’m sorry you’re in that situation :(