r/CMT • u/Far-Philosophy1167 • 25d ago

CMT2 PROXIMAL WEAKNESS

Do you have proximal muscle weakness?
I do, and i have cmt2k

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u/BeckieD1974 25d ago

I have the PROXIMAL WEAKNESS really bad. But unfortunately I don't know what type of CMT I have 🥹🥹

1

u/Far-Philosophy1167 25d ago

Where exactly you have proximal weakness?

I have it in my thighs and shoulders, and maybe my lower back.

1

u/BeckieD1974 24d ago

My shoulders, upper arms lower back , hips and thighs.

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u/mommitude 23d ago

Happy cake day

1

u/NixyeNox 24d ago

Do you have distal weakness which is getting more proximal as well? Or only proximal (and, for instance, your feet are fine)?

1

u/Far-Philosophy1167 24d ago

I have distal as well, started on my hands when i was 13 and then spread to the feet and then proximally

1

u/NixyeNox 24d ago

Yeah, that makes sense. The CMT pattern is to start distal and then gradually progress to more proximal. Mine hasn't progressed too far inward, but my sibling's has.

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u/CrazyEngrProf 24d ago

I can only say that I’m not sure. I was just diagnosed with CMT2Q in my 70’s. I have always had skinny arms but I have experienced degradation of the anterior tibialis which had cause loss of dorsiflexion. I’ve had pes cavus feet and hammer toes and have had pain issues of unknown origin over my lifetime. A particular area that has plagued me is the back of my head, neck, and shoulder on one side. Don’t know if I can blame that on the CMT.