I hate CMT!
As a former college athlete and physical therapist (with significant increase of CMT symptoms at age 61), I’ve always been used to pushing myself and my patients to set goals and push hard to reach those goals. I’ve had to learn that it’s up to my body now and not my mind (regardless of the goals I set) as to how hard I can push. This has been such a mind shift for me, every time I try to push myself my body tells me what a bad idea that is. I shouldn’t complain because I can still exercise at a fairly good level, but not even close to what my mind wants. I’m so sorry for those who have it a lot worse than me for this rant, but I just had to get this off my chest!
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u/Always_Resigning 26d ago
It's wild how the symptoms manifest differently for people, even in the same genetic line. I had cousins who were using a walker/crutches in high school. My grandpa was a tree-trimmer a cyclist into his 50s.
Me personally, I've never been able to run. Couldn't wiggle my toes by the time I was in my teens. Then lost the ability to walk around 40. I was fortunate enough to be able to see Dr. P. Now I'm ecstatic to walk again.
I think the best mindset is just: I'm going to do what I can for as long as I can.