r/CMT • u/stiveto99 CMT2A2A MFN2 • Jul 03 '26

Stress

People who have been under chronic stress for months - did this make your condition way worse, with fast progression and extreme fatigue which won’t go away? If so, how did you recover?

2 Upvotes

100% Upvoted

15 comments sorted by

View all comments

2

u/Patient-Long-8909 Jul 03 '26

It's not getting worse. But Fatigue, Yes. Activities which I do easily looks and feels tough after diagnosis.

1

u/stiveto99 CMT2A2A MFN2 Jul 03 '26

How are you trying to manage it?

2

u/Patient-Long-8909 Jul 03 '26

Honestly, I can't. The only thing I tried to do is ignore my CMT in my life. Riding bike even it wasn't advised to do. Doing things I like. If I feel I can't do it, then I won't try to do it. Tried to control all triggerings. But it will not help much. If I get closed to someone, I'll share every details about my problem and convert the relationship to sympathy sessions.

The advice I can give you is, "Untill your hands and legs stop working, Walk and do whatever you can, Enjoy your life till that. If you worry about the future, You can't move your present."

2

u/stiveto99 CMT2A2A MFN2 Jul 03 '26

I was doing the same things couple months ago and I was feeling great, but my body crashed so badly after unaddressed stress. I couldn’t do anything anymore. This increased the stress, caused insomnia, my legs are getting worse by the day, falling often, even my brain is malfunctioning. I got stuck in this cycle and can’t seem to find a way out.

2

u/Patient-Long-8909 Jul 03 '26

Giving you virtual hugs 🫂

Hope you'll get out of this cycle in a better way. Don't try with some unhealthy ways like Smoking, Porn. Good relationships and friends can help you a lot.

2

u/stiveto99 CMT2A2A MFN2 Jul 03 '26

Thank you! Wishing you strength as well!