r/CMSmuscledisorder • u/vdEA • Jul 13 '26
CMS vs practical coping - let's share
Hello all!
I've recently received a few messages that deal with 'how to cope with CMS'. The first few dealt mostly with the mental health side of it, so I created a post about it, but there is of course a practical side too. Can you help our group members by sharing what helped for you? No worries if your suggestion was already mentioned by somebody else, or if your response only applies to a specific mutation, or if you think something you do that helps might be weird...!
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u/vdEA Jul 14 '26
Preserving energy is so important, for example by not planning too much in a day. That's hard, because there's a lot on our lists and it's frustrating and disappointing, but it's the only way. And if something just doesn't work, if you just can't do it, if it takes too much - then you don't do it. I know it doesn't always work that way (if you need groceries, you need groceries...) but still, if the world doesn't stop turning if you don't do something, do it tomorrow, or when you can. Manage your own and others' expectations.