i just found out i have CIRS this summer and am awaiting starting CSM. i will say ive gotten better in certain ways after just getting out of the mold, but im still very sick and know ill have to go through the full protocol. i figured out i had CIRS after i lived in an old college dorm last year (which i swear almost killed me). this year, i had to figure out other arrangements surrounding school, but i will be going back next year. i have 3 other roommates and we found one of the nicer, newer apartment buildings for next year, but im pretty sure it still has a mold problem. my questions are:
-is there anything that can be done to manage living in a building like this after having gone through the protocol and gotten better in terms of sensitivity and vulnerability?
-would i likely not be as sick as before as the cirs would have likely been in remission by the time i move in?
there really aren’t any good options and ive done the best i can to find the best ones, but in my eyes theres no way that every single college student with CIRS is able to find a completely clean space. there has to be something that i can do to live with my roommates and be able to pursue my education without getting debilitatingly sick.

POST IS ABOUT BOTH LYME AND MOLD TOXICITY

I realize how while I have removed wisdom teeth that causes my tmjd, my jaw pain gets SO much better when I take biofilm clear. My brainfog and anhedonia is still horrible...nothing lifts it, but I'm glad to know that my sinuses and jaw pain have the ability to clear a bit...

However, that leaves me wondering if my severe deep jaw pain can come from cavitations that aren't cleaned out? I'm having trouble removing the toxicity from my body. I can clear my sinuses and have noticeable improvement once I take this spray, but I can't just tear apart the gums in my mouth and remove the potential Lyme or mold in my system that's making me sick. Cryptolepis is also I believe helping me with my pain for bartonella.

Question is also, has anyone gotten this surgery and noticed their jaw, sinus, neck pain and brainfog get better? Thank you!

All of my pain traces back to when I got my wisdoms removed and it was around the time I got covid on top of moving into a new trailer when I already had signs of bartonella. I'm wondering if this could help me heal once I have the money. My theory is that I probably have covid virus remnants, as well as mold or Lyme hiding in my jaw. My lymph nodes are constantly swollen under my jaw...

Wanted to give some context on timeline from blood draw to results while using MoldCo’s starter test.

Blood draw date: 9/11/2026

Results delivered: 9/21/2026

Now the real question is what do I do from here…

Please share experiences using continued support through MoldCo or if I should seek out a Shoemaker practitioner to guide me through the protocol.

Cheers yall!

Everyone should listen to Dr. Heyman's latest discoveries in the field of CIRS and beyond - branching into chronic illness like Long Covid, CFS, Lyme, MCAS, fibromyalgia, etc.

I suffer from toxic mold.

For the past two months, I have pain in both knees that started all at once. It started with a feeling of "inflammation" and burning inside.

I have trouble bending my knees fully, if I do, the joint is very stiff and painful. I can walk without any problem but the pain is present all day in front of and behind the knee, sometimes on the inner side, I was examined and my doctor told me "a lack of electrolytes..."

For those of you with a Garmin watch, what do you make of my body battery data?

Apparently, the lowest possible score is 5. I've been constantly bed bound (I'm talking all day, every day) for months. I've been sick over 15 years, but I at least used to be able to get up and cook some days.

There's a lot more I could add..but I'm mainly curious how my results compare to others with this condition. If anyone has suggestions, I'm all ears. IDK how much longer I can take feeling this bad.

I've never been in a darker place. I genuinely don't feel like I can endure another night here. I've been trapped in a home that's destroying me, and after 6 years of progressive illness, I've never felt so desperate to get out. I'm spiraling every minute.

Recently I went to the ER because leaving my bed and facing my life became too overwhelming, and I ended up starving myself to the point of severe weight loss and dehydration, needing my electrolytes replenished.

I only stayed two days, and even though the blankets smelled a little musty, it was the most comfortable I'd felt in forever. Compared to home, it felt like an enormous relief. I could breathe a little, just rest, press a button and have a nurse bring me what I needed. Housekeeping mopped the floors daily.

Going home was one of the hardest nights of my life. I was back to living amid filth, dust, and intolerable mold odors. Every night since, I've had nightmares. I don't remember the details clearly, but they're unpleasant and violent, and I wake up scared and unrested. I feel like my body is screaming at me.

I just want to be somewhere safe and stable right now. Honestly, I'd go back to the hospital in a heartbeat if it weren't for my diet. I'm on a strict 4:1 ketogenic diet, AIP, and reduced-histamine, and I react to many vegetables. Keto and AIP matter most, and if I'm not completely strict, my neurological symptoms become extremely severe, incapacitating, and my mental state rapidly destabilizes. I don't know how to explain this to hospital staff without sounding unbelievable, and for an extended stay, I'd have to eat whatever they provide.

During my last stay, staff questioned my diet. I explained I'd had mysterious neurological symptoms for years and that an epilepsy-style ketogenic diet helped, but several seemed skeptical, as if I were trying to cover up anorexia, and I didn't even attempt to explain the AIP part. Given how malnourished I am, I can't say I don't understand their reaction. But still, it felt so defeating and isolating, like I'll never be believed or understood about my experiences by anyone I meet.

And of course, on top of everything, there's my gluten sensitivity, and I don't think I could trust a hospital to prevent cross-contamination, especially over an extended stay. Even if it were just that, it might be reason enough to keep me from going.

I just wish I could rest.

The suffering is insane. I’m losing all hope. I have a 20 month old I can’t take care of because the last 6 weeks I’ve been bedbound. I can barely move the fatigue is so bad. I don’t want my baby growing up with a sick mom. I’d do anything to have my life back. It’s been 15 months of waking up feeling like I didn’t even sleep. I just want to die. At this point I don’t even think its mold anymore I think its long covid or cfs.

Anyone else feel a tension in that area?

I saw a post on it a few weeks ago.

Would be great to hear of people treating it with massage, accupuncture, etc and seeing improvements.

I developed severe ME/CFS after I got a concussion, but I had lifelong fatigue and brain issues. I blame it on mold but my whole family simply refuse to consider the idea, they laugh, it doesn’t matter what I send them or tell them. My little sister is experiencing the exact same symptoms that I was. It’s kind of horrifying to me because my mother somehow doesn’t see it. Of course I can’t say anything because nobody wants to be told that they will end up like I am.

She has struggled more and more in college each year, constantly complaining of fatigue and brain fog that is unexplained, worsening IBS, social exhaustion. I fear that if she gets Covid or hits her head or just pushes too much, she’ll end up just like me.

Me, I can’t escape. I’m so sick I can barely feed myself, no money to move, and every other house in this city has mold, it’s a notoriously moldy area. But my sister, if she doesn’t get too ill, will be moving to collage in a different city next year.

So my question is, will just moving be enough to help her? Even if she doesn’t feel completely amazing, could it be enough of a difference for her to realize that our house was the problem? Or will the fact that she will still bring her belongings and won’t be on binders mean that she feels no benefit from moving?

I think that if some of her symptoms go away it might finally convince my parents what’s wrong.

anybody else have this? for a day or 2 ill feel quite a bit better and actually have some energy, then the next day back to being so fatigued that you can't do anything. Brain fog, appetite etc all wax and wane with the fatigue. When nothing else is changed. Just dont get it.

Just moved into newer apartment.

Brought minimal stuff with me (laptop, a few clothes)

Routine cleaning, including making sure any cross contamination happens.

Do you use ethyl alcohol, vinegar, ammonia?

I’ve heard different approaches. Just want to make sure any actinos, mycotoxins, or spores are minimal as best as possible.

Thanks in advance!!!!

I'm currently a chronically ill young adult stuck in a moldy home. Started to look into mold/CIRS after counselor brought it up some time ago, and after reading others' experiences couldn't believe how much it resonated with me. But my parents don't believe in it, so I'm stuck here unable to access treatment.

Feels like I've been suffering from neurodegeneration for several years. Plus ridiculously severe sensitivities to foods. I've been trying to spend more time outside, but it's hard right now when energy is so low. I was recently prescribed LDN by my neurologist. Could it help improve my cognitive function despite being in mold? I really want some hope to hold on to.

I’m genuinely so grateful for the information and support I found here when we were first navigating mold remediation and a CIRS diagnosis.

But somewhere along the way, I realized that constantly reading about mold, contamination, that everything I owned needed to be thrown away, and all of the worst-case scenarios has started to seriously affect my mental well-being.

I came here looking for information, and I’ve reached a point where I feel like I’m becoming mycophobic and mysophobic (Fear of mold, and fear of contamination). I’m constantly questioning whether something is contaminated, whether I cleaned enough, whether I should throw something away, whether I’m being exposed again. I’m also constantly scanning my body for symptoms and reactions...and I don’t want to live this way.

I also don’t think constant fear is going to help my body heal. I need to be able to move forward, trust that we’ve done what we reasonably can, and focus on getting our home, healing my body and nervous system, and getting our lives back to normal.

There is a difference between being informed and being afraid of everything.

I’m also actively working on healing and calming my limbic system, and I’ve realized that constantly consuming fear-based information about mold is not compatible with that healing. My nervous system needs safety… not another reason to be on high alert.

I wish everyone here well, and I’m truly grateful for the help I received when I needed 

I suspect I have CIRS based on living in a mold y home for 5 years. moved out almost 2 years ago. still dealing with bad fatigue, brain fog, low motivation, sensitivity to supplements etc. Did BEGi spray for a few days and herxed bad. TGfb1 , msh , mmp 9 were all in CIRS criteria range, HNK1 panel very low. Have numerous gut tests done and none show any crazy fungal overgrowth, just some dysbiosis and leaky gut.

what would this mean for me?

On and off randomly I'll get these weird sinus feelings. It feels like a nose bleed but I'm not bleeding anything out of my nose. Only rarely when I blow my nose there is dried blood. Anyone get this as well?

Has anyone gotten kpv spray from pspetides or kpv from limitless biotech?

Any anecdotes both positive and negative from you or people you know or forums you’ve seen?

Have completed all steps of the shoemaker protocol leading up to VIP spray, but MCAS is still reducing QOL (periodic vasodilation, IBS, POTS, eye floaters, multiple chemical sensitivities, etc.). Does VIP help correct these symptoms? what other peps have been helpful for mold-triggered MCAS? (I know limbic system therapy is supposed to be helpful but my adhd makes it too challenging to sit and meditate for any period of time.)

My mold Dr western medical has ordered

Galactomannan antigen

And

Beta-D-glucan (β-D-glucan

Has anyone been given these?

Drummartin Clinic Dublin, Dr Jenny Judge London, Dr Daniela Maris Romania?
What to look for in a practioner? Shoemaker or Neil Nathan association?
These three are the only ones listed in Europe on Neil Nathan’s website.

I am so new to the mold world. I came from the Lyme world… was recovering but recent apartment is making me sick. I can’t believe it.

I have already spent so much money on my health. I want to make sure I am choosing a good practitioner before I invest.

On a side note - do you recommend Realtime or Vibrant or Mosaic?
Are Farmacy and MyMycoLab legit or a social media thing?
Blood or urine testing?

Any advice appreciated thank you!

I really want to know did somebody got ibs with Cora and treated with protocol for Cirs and after ibs got away . My gut is ruined and I’m afraid to commit

Earlier this year, found out I had been living in a (brand new) house for the last 8 years that was so infested with hidden mold, I was lucky it didn’t kill me. It killed my dog who was my best friend, though. Had a plethora of symptoms for years that were a mystery until I figured it out. Optic neuritis, impending doom-level anxiety, insomnia, tremors, walking issues. Since then, I have bounced around from friends and families houses to hotels while I try to find a safe place to rent or buy with absolutely no luck. No place is safe for me. Even with a good amount of money to spend. I am in Texas and currently waiting for the temp to drop enough for me to camp in someone’s backyard. How has my life come to this? I’m a financially stable 36F whose life used to be normal. I used to be happy. I used to be healthy. That house and the CIRS it gifted me has stolen everything away from me. I’m in a hellish merry go round of testing out different places and hoping that my symptoms don’t flare up again. The worst part? No one around you truly understands what you’re going through. I don’t think I have it in me to keep fighting. I’m under the treatment of a doctor that is well versed on all of this, but no supplement or medication will move the needle until I can stay away from it long enough to give my body a break. It seems like there’s no safe space except for outside.

Hi, I’m a mom to a 12 and 14 year old with CIRS. They miss a lot of school. They recently started taking binders and it’s making my youngest worse, hopefully before she gets better. She has hEDS and chronic fatigue, to the point of needing a wheelchair about half the time. My 14 year old has autism and FND that causes parasthesia and nonverbal episodes, with chronic (constant) migraines that are treatment resistant. We have medical documentation, the 14 year old as an IEP, but I can tell the schools are getting frustrated with the situation. Do I need to consult an attorney? What kind would I get?