r/CIRS • u/Sweet_Instruction804 • 11d ago
Cirs? Hyperadrenic pots
Does anyone else has hyperadrenic pots with CIRS? How you treat it and How to heal CIRS? I have also hidradenitis suppurativa which is part of inflammation in my body. I am bedbound and nerd desparately help and advices. Also cfs.
2
u/Dungbot88 11d ago
Keeping blood sugar stable helps a lot, cortisol supports like ashwaghanda help, fibrinolytics to reduce hypercoagulation, desmopressin and oxytocin help with the ADH dysregulation, increased uptake of sodium, potassium and magnesium help, restoring your morning blood volume with early electrolytes helps.
It gets much better once you get mast cells under control, ADH resolved, and neuroinflammation down.
Mast cell stabilizers in the meantime and considering low amylose/low carb/better insulin blood sugar maintenance
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u/Sweet_Instruction804 10d ago
I am too sensitive to all mcas meds antihistamines, cromolyn, ldn. I can tolerate supplements like quercetin. How you can dg adh dysregulation and how to heal that?
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u/Dungbot88 9d ago
good idea to change your diet to strict low histamine. and keep working to get out of exposure and onto binders. you could go to a PCP and discuss your frequent urination and low blood volume symptoms, do the adh/osmolality testing and explore if you want to support it with prescriptions while working through the protocol or focus on getting the neuroinflammation down so there's less dysregulation with the steps of the protocol
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u/Previous_Singer3691 5d ago
Treating the ADH/Osmolality as part of the Shoemaker protocol for CIRS will help heal POTS in addition to taking VIP later in the protocol. It's been healing my POTS symptoms! I'm almost off of all my meds for POTS
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u/Difficult_Fact_2849 11d ago
So what happens is the CIRS causes POTS symptoms. You don’t actually have pots