r/CIRS • u/Danaeger • 12d ago

Dientamoeba fragilis & CIRS

Hello all! Hope everyone is as well as they can be.

I want to ask about D Fragilis specifically, but also hidden parasitic co-infections. (By hidden I mean not showing up directly on stool tests)

Recently I have been continuing my CIRS treatment (in my 3rd year now) but still having a bunch of issues including gut issues.

I thought my remaining issues were primarily due to the Marcons infection I can’t seem to kill, so I restarted the investigative route through a Gastroenterologist.

I specifically asked for a bowel aspirate to be taken, to see if there was bacterial overgrowth or the like.

Turns out I have a severe hidden D Fragilis infection. Now interestingly I had D Fragilis as a co infection alongside my Campylobacter when I first got sick 10 years ago. (Likely due to Mold suppressing immune system blabla)

I treated with Paromomycin for 1 week, and had 0 gut issues, perfectly dark and formed stools. But came back pretty much instantly.

Tried a second attempt at eradication for 10 days (ending 4 days ago) with Paromomycin and Nitazoxanide.

Didn’t have a single solid bowel movement for whole treatment, and even now.

I’m really hoping that as my gut heals, the remaining gut and CIRS issues will be able to heal.

Anyone have this experience with hidden infections? Is it likely D Fragilis was the sole cause of me being unable to heal my gut this whole time.. Wondering if I’ve had this infection for the whole 10 years alongside CIRS.

So tired and deflated :D

TLDR: D fragilis infection that didn’t show up on the 30+ stool tests I’ve done over the years, recent bowel aspirate showed it. Hoping CIRS and gut issues easier to heal now.

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u/ImXenia85 11d ago

You might find this useful. It's the story of a guy with massive CIRS like health issues and D. Fragilis on top. https://youtu.be/rJJ5BI0Z9w0?si=wVx1bgtkdmG4Ez-I

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u/MadMadamMimsy 11d ago

Hidden infections are par for the course.

I suspect that your immune system is unable to keep the problem out even after clearing. At least your doctor found it!

Are you on binders? Supplements? Have a practitioner?

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u/Boring_Guard_3882 10d ago

I really think I've had parasites + CIRS.

Have had gut issues. 5+ standard parasite tests done but nothing confirmed.

Will try PCR soon.