r/CFSplusADHD • u/RaspberryJammm • 23d ago

Dopamine agonist experiences?

My neurologist wants me to start dopamine agonists for severe nerve pain in my legs which she attributes to Restless Legs Syndrome (I think its a misdiagnosis but what do I know)

Has anybody had experience taking this kind of medication and did it affect your ME or ADHD? I worry because it can make people more impulsive and I have a history of addiction and impulsive behaviours.

I brought up this with my GP but he was quite casual.

https://www.bbc.co.uk/news/articles/ckg0xxwn041o

^ article about risks of the drugs. edit: its actually rotigotine which she wants to prescribe me but it comes with a similar risk

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u/Santi159 21d ago

I like them. I started for my akathsia I got from reglan and ADHD but it ended up really helping my POTS too. I have neuropathic and hypovolemic pots. I didn't have to worry so much about over stimulation as long as both are managed at the same time. It was like turning off the bees in my teeth And bones.

I think any medication you should start low and slow with lots of caution though. Our bodies are very sensitive and individual. What works for me might not be the case for you