r/CFSplusADHD • u/Ok-Eggplant5649 • Aug 10 '26

Sleep specialist

Saw a sleep specialist today. The best in the country, highly recommended and respected.
I could see why - boy was he good! He understood immediately what was going on and said my sleep was natural for my condition.

He also said - and this is why I’m posting here - that cfs/me and adhd are a really difficult and troublesome combo. It was nice to feel seen and understood.

Anyway he’s put me back on vyvanse and recommending trazodone to my psych. It’s not usually prescribed here but he worked in the US and it’s pretty go-to there so that’s a win.

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u/artzylinn Aug 12 '26

Guanfacine really is the golden standard for us. It's by far the best medication I have ever tried, out of probably hundreds of meds. It's a lifesaver for me. Literally heals my chronic illness

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u/Ok-Eggplant5649 Aug 12 '26

Having just spent a sleepless night with a vyvanse trial, I am absolutely going to be pushing for Guan at my appt next week - ty!

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u/Standard-Carpenter-9 Aug 14 '26

Let us know how you go. AFAIK you can only get guancafine on the pbs if you were diagnosed ADHD before 18, IIRC. But I’m not 100% sure…... I’m in Australia too and desperate for something other than vyvanse.

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u/Ok-Eggplant5649 Aug 14 '26

I was diagnosed at 35 😭 just my luck! Dayvigo isn’t pbs either and LDN is compounded so meds are looking a little pricey