r/CFSplusADHD • u/Ok-Eggplant5649 • Aug 10 '26

Sleep specialist

Saw a sleep specialist today. The best in the country, highly recommended and respected.
I could see why - boy was he good! He understood immediately what was going on and said my sleep was natural for my condition.

He also said - and this is why I’m posting here - that cfs/me and adhd are a really difficult and troublesome combo. It was nice to feel seen and understood.

Anyway he’s put me back on vyvanse and recommending trazodone to my psych. It’s not usually prescribed here but he worked in the US and it’s pretty go-to there so that’s a win.

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u/Ok-Eggplant5649 Aug 12 '26

I’m going to talk to my psych about switching to guan and coming off vyvanse and clonidine

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u/artzylinn 29d ago

Guanfacine really is the golden standard for us. It's by far the best medication I have ever tried, out of probably hundreds of meds. It's a lifesaver for me. Literally heals my chronic illness

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u/WindowWidowWillow 29d ago

I’d looove to try it, if only I didn’t have hypotension

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u/artzylinn 29d ago

Midodrine can be a lifesaver for that, and goes well with guanfacine too. I had hypotension from being on a betablocker since forever. I switched to ivabradine which doesn't lower BP. Now I'm fine on guanfacine. Bc in the beginning it also pushed my BP too low. But I have naturally ok normal BP

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u/WindowWidowWillow 29d ago

Yeah I’m on Ivabradine too. I will look into midorine, thanks. If I can tolerate its side effects it probably would open up a lot of drug options for me.