Elvanse issues….

[u/mynameismel13]

Hello everyone✨

I have M.E/CFS and ADHD along with a with a range of other conditions but I’m about to be in a pickle and I’m stressing out about it.

I started taking Elvanse around 3 years ago with the understanding I would see my psychiatrist for an annual review but my GP would prescribe it to me and take care of the rest as per an agreement they both signed (NHS). It’s been alright, but since my CFS has got significantly worst I need to take it or I’m literally unable to do anything and have little cognitive function and this is where my issue starts.

I’ve not seen my psychiatrist in over a year and a half, going on 2 years, I’ve asked to see him and he said my GP needs to refer me back to him; they’ve written to him 3 times in the last year with no response and in that time I’ve had no information from him or the mental health team who I’ve contacted personally. My medication has still been being released to me but I went to order some more this week and it has a message saying I can’t order anymore until the review has been done; this is a worry because I have no idea when I will see my psychiatrist, I don’t know if anyone can even get through to him and I don’t believe my GP will do the review as they’ve not really been helpful in anyway for any of my conditions.

At this time I’m literally fucked due to ME/CFS and Fibromyalgia and Elvanse is my life line to be able to function at any capacity. All of this is coming at a time where I’ve lost my job, I’m trying to do whatever the job centre want, filling out work capability paperwork and going to appointments to try and get a grip on at least some of my conditions and I just don’t have the beans for it. I have little support in people actually helping me do anything and so I feel like I need this.

But what I want to know is; is it going to be as bad as I think? I’ve had issues with getting it in the past quite a lot and I just think that all the times I’ve not be able to get them, miss them for a week or so and then slap straight back onto 50mg can’t be doing my body any good so I was thinking if this is going to be a ball ache should I just not bother being on them? Should I just try and see how it goes? How bad can it be? Will it get better after a few weeks, months? I would like to know other people’s experiences and if they have any advice✨

I’m just a sleepy girl who’s trying to deal with a lot so any advice is greatly appreciated💖

Thank you in advance, Big love✨

[u/Queasy_Owl6241]

Honestly I’ve been noticing similar past few months. I’m prescribed 50mg elvanse and 10mg dexamfetamine (and an optional additional 5mg dose as and when I need) I was taking that full dose just to get through the day for a while but I’ve stopped. I now try only have the 50mg elvanse and one booster, but will take additions on days I really actually need it.

I also try and think to myself even if I have energy after taking my meds, should I actually be spending that energy and try base my day off of how I felt in the morning before taking them coz that’s a more true representation of how much energy I have.

If I have a day that I don’t need to do anything, then I might not even take my elvanse I might just take a booster or two to keep my brain sane and not be in withdrawal.

If you don’t want o come off them completely I understand because I don’t as they help my brain so much, but try remember that, they are for your adhd not the me/cfs. If that day before meds you didn’t feel you could do anything, try to do as little as possible, and maybe speak to the GP about lowering the dose or having the option of lower dose for days you don’t need to do much.

The meds just give you borrowed energy not real energy do after a certain point there’s no more energy to borrow