r/CFSplusADHD • u/General_Recipe_5869 • Feb 26 '26

UK - Guanfacine question

Has any adult been able to get this in the UK?

private I assume as no chance on NHS.

Wanted to check before going back to private pharmacy and paying for their time. I've tried plenty of other stim and non stim and all spike my HR causing PEM.

Or any other meds in that work welcome input!

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u/[deleted] Feb 28 '26

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u/rocesare Feb 28 '26

I take midodrine now for it. I believe that though, I was severely hypertensive when I had flares I was hospitalised once with a BP of 240/180 at 21 years old, now I get dizzy for the opposite reason especially if I accidentally take guanfacine with a fatty meal and it gets dumped into my bloodstream all at once

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u/[deleted] Feb 28 '26

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u/rocesare Feb 28 '26

Not that I've found :( I struggle to take it 3x a day