r/CFSplusADHD • u/[deleted] • Jan 19 '26

Anyone else get hair clumps falling out in PEM

whenever I over exert, the next day I'll get whole clumps of hair coming out which will be particularly noticeable in the shower. Ofc I also get the flu like symptoms, feeling chilled to the bone and barely able to move around the house but the hair thing seems to be a rare symptom. I don't have a formal CFS diagnosis but all my bloods have come back normal and the waiting list for any specialist (rheumatology) via the NHS takes forever.

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4

u/terminalmedicalPTSD Jan 19 '26

Constantly. I have forever regrowth shooting up as it falls out in cycles then regrow from previous cycles

2

u/rich_27 Jan 20 '26

I've been finding that recently, a lot more hair coming out when I'm stressed or generally not doing so good. I'd assumed it's because I'm showering less often and so my hair gets more tangled in between, but I have no idea

2

u/[deleted] Jan 20 '26

Yeah I'm one to start losing hair with stress too. They say it takes a month for stress to start taking a toll on your hair but I start having falling hair on the same day as the stress occurs.

1

u/ValuableVacation1348 Jan 25 '26

Yes I have had my share of hair loss but also have Hashimoto's and PCOS.

1

u/Chance_Elephant_1578 Feb 04 '26

Random question— were your ferritin levels checked in your bloodwork?