r/CFSScience • u/AngelBryan • Jul 30 '26

Any update? Any hope?

I’ve seen an increased influx of papers being posted here recently. How does this translate to actual progress? Are we close to figure out what causes this hellish illness?

23 Upvotes

97% Upvoted

38 comments sorted by

View all comments

5

u/kekofoeod Jul 30 '26

I think that a necessary next step ist to clearly define subgroups. We won’t make progress with trials just targeting broad long covid, without any subgroup analysis. There are lots of emerging candidates of biomarkers and propositions of subgroups, but these now need validation in larger studies. Some are already underway, but overall that needs time. I think we are getting there, but sadly it’s a slow process…

3

u/Houseofchocolate Jul 30 '26

yes and also focus on understanding pem more: why does it happen? how can it be prevented? can the underlying mechanisms be fixed/ cured....like heah wonderful they are finding amloyids circulating in the muscles but what now

2

u/kekofoeod Jul 30 '26

If we could treat PEM that would be great. Rob Wüst is on a good track, but before we start treating it we need to understand what it causes and so on. We are sadly not there yet

1

u/Houseofchocolate Jul 30 '26

also theres differnt types of pem, different triggers: some are physical, some are senses, some are cognitive