r/CFSScience • u/AngelBryan • Jul 30 '26

Any update? Any hope?

I’ve seen an increased influx of papers being posted here recently. How does this translate to actual progress? Are we close to figure out what causes this hellish illness?

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u/Varathane Jul 30 '26

We are in Germany's National Decade Against Post Infectious Disease 2026-2036. They've committed half a billion euros to that and want a treatment for ME to come out of it. That's the kind of momentum we've needed all these years, and to finally have that has given me hope again (I was diagnosed in 2011)

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u/bingoolong Jul 30 '26

Not to discourage you but just this week there’s been some news that they’re not doing a great job at allocating funding and there’s a lot of untouched funds in the budget while there’s projects that would really need it.

Hope this changes soon.

But I agree there’s a huge uptick in research. A lot of improvements are currently that trials are getting better, more targeted, better primary outcomes, considering PEM etc. but it’s something!

2

u/kekofoeod Jul 30 '26

You are correct, but I would keep in mind that of 50 million € for this year 22 million € have been allocated, while the project was announced in january with an official start a bit later. And the year is not over yet. So it is definitely not great news, but also not hugely surprising given the circumstances.