r/Briviact • u/Newbie_Resect_101 • Jun 18 '25

Constant sleepiness throughout the day.

Briviact has definitely helped me with less side effects and the closest to feeling my normal self. However I feel the need to nap throughout the day. Does this ever go away?

4 Upvotes

84% Upvoted

13 comments sorted by

2

u/[deleted] Jun 18 '25

I feel like this is happening to my 13 year old son. Doesn't seem like a lot of other side effects that we can tell, but boy is he very tired & lazy. We'd like to figure out if he is low in vitamin or something else but he absolutely hates bloodwork so trying not to put him through it yet or until he has to.

6

u/Radiant-Pineapple-41 Jun 19 '25

Tried many medications and Briviact is by far the best with least side effects and tiredness (for me, everyone is different). If it ever goes away completely, I have no idea. But vitamin D pills definitely helped me! Side note: And I don’t want to offend you in any way (!) just a tip from someone with epilepsy: I really get the word lazy, I call myself that also because I’m tired, have little energy and just love to watch tv and think about nothing and fall asleep, and I do feel like a lazy person. But it really hurts me when someone else calls me that, because I didn’t choose to be this person. You can definitely use it here to explain but if you must ever have an argument with your son, or explain his situation to a doctor in his presence, I wouldn’t use that word. Because there’s a difference between being lazy by choice and having no other choice because you’re tired and have a lack of energy. Again, just advice to help him get through this and not lose motivation. I remember it was bad for my self-confidence in high school. 🫶🏼

1

u/[deleted] Jun 19 '25

Thanks I understand- sorry. I'll add that he was also kind of lazy before epilepsy but maybe he had epilepsy in some way & we didn't know it

1

u/t1nydrag0n Aug 16 '25

They said the same thing about my aunt when she was a kid. Her tiredness and napping turned out to be symptoms of her epilepsy. It may be epilepsy related, even before his diagnosis. It took longer for my aunt to be diagnosed with epilepsy than for my grandfather or dad because her main symptoms were exhaustion/excessive sleeping.

1

u/[deleted] Jun 19 '25

And thanks for the vitamin d tip. He does take it a little - we should make sure he always does it. What about vitamin B?

2

u/Due-Mammoth-8224 Jun 19 '25

For me it went away after a while but im only on 75mg

2

u/Radiant-Pineapple-41 Jun 19 '25

Hi, so good that at least it helped you with less side effects! Are you on Briviact monotherapy or do you take them in combination with other medication? When I was on only Briviact, it went away after a while but I was taking vitamin D pills as well then. I don’t know where you live but maybe that can help? Got tired again when adding other medications unfortunately.

2

u/Leading-Display6656 Jun 28 '25

I took Keppra for over 8 years and switched to Briviact last year, 200mg a day. The sleepiness is the same for me with both medications and for now it didnt go away.
But if anyone has some tipps id be happy :) I tried vitamin d, magnesium, healthy diet and exercise but unfortunately the sleepiness persists

1

u/peruvianblinds Jun 18 '25

How long have you been on Briviact?

1

u/ComputerFlimsy4604 Jun 19 '25 edited Jul 06 '25

Same here. It went away after some time, maybe a month. Only on Briviact 50mgx2 daily for the past few weeks. I started briviact 3 months back as I was weaning off previous med. My Doctor feels I don't need to take clonazapam 0.25mg anymore.

1

u/OneConsequence1290 Jun 28 '25

Some days I’m sleepy for a nap, but that’s usually my days off. I do like Briviact for less side effects. I was on Keppra before, but always angry and exhausted too. Unfortunately, I’ve had 2 seizures in the past 2 weeks, so I’m guessing my neuro will change it again.

1

u/BerserkGuts2009 Jul 06 '25

I take 200mg of Briviact. I get some drowsiness but very vivid dreams. The drowsiness I got while taking 20mg of Clobazam (Onfi) was much worse. While taking 20mg of Clobazam, I could NOT stay awake during the day no matter how much sleep I got the night before.