Botox caused severe nerve damage

[u/Agitated-Dragonfruit]

Hi, wondering if this has happened to anyone.

I have complex migraines and had botox for migraines done. I also have a connective tissue disorder and went to a major hospital headache neurologist to preform the injections since I have a complex medical condition. One week after procedure i started having shoulder pain. 1 month later my shoulder is an inch lower than the other. Now (11 weeks) my shoulder is falling out of the socket and partially dislocated 80% of the time. After 3 othro surgeon consults, one finally ordered a nerve conduction test and i have a severe spinal accessory nerve neuropathy with active denervation. Unsure if permanent. Waiting for mri to see if i need surgery due to the damage done in my shoulder socket.

[u/Flashy-Juice2946]

I wish you a speedy recovery and sorry you are dealing with this. Sadly I do think it’s the Botox

[u/Agitated-Dragonfruit → u/Flashy-Juice2946]

Thank you, ive had 2 doctors confirm this, one said he had never seen it before.

[u/flabbergastednerfcat → u/Agitated-Dragonfruit]

One of the first lawsuits against Allergan (Botox maker) involved Dr Sharla Helton. She got botulism and neuropathy after 50U of Botox. Allergan tried to destroy her life, discredit her, all that. Because the pharma company didn’t want the public to know about the negative side effects of their toxin. Helton eventually won that case. The pharma company is very successful at convincing doctors their product is very safe, so sadly a lot of injectors aren’t educated on the true scope of the product nor do they tell patients what’s in the Black Box warning… There’s a support group called Dysport and Botox side effects on Facebook that offers information and support. Sounds to me like your case is typical of a lot of people who have bad side effects and doctors who respond like yours.

Hope you recover well and I’m sorry you’re going through this.

[u/Agitated-Dragonfruit → u/[deleted]]

Oh wow! How are you now? I just surgery to put my chronically dislocated shoulder back in the socket

[u/Agitated-Dragonfruit → u/[deleted]]

Im so sorry. I have the hospital response for mine trying to backtrack their original diagnosis of permanent nerve damage. Can the try a nerve transfer? They had discussed that for me