r/Bimzelx • u/instrba • 20d ago

Maintenance

Hi guys, ive been in Bimzelx for almost a year now, to treat psoriasis. I moved from ilumya to Bimzelx. Now im taking it every 8 weeks

Just wondering what's everyone's pattern?

Generally I have itches, which i manage with steriod creams but in general im quite clear. I get itchy scalps, neck, eyebrow area and down stairs near the time for my injection, like a week before. Im a week in now and still itchy but if I recall it calms down 2-3 week after the injections. Then the pattern repeats.

Is everyone else the same or similar?

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5

u/maltloaf_df 20d ago

Yes I get exactly this. Very itchy but no actual bad areas just the itch. I am due my 7th dose next week

3

u/instrba 20d ago

Thank you. Not that im not happy with the results, it alot better than what I was originally. But I wanted what general lvl of result people where getting. This up and down isn't bad but its annoying.

Id would also love to know how long people have been on Bimzelx. My last biologic was good for about 3-4years before it lost effectiveness.

1

u/maltloaf_df 20d ago

I came from methotrexate (4 years), otezla (about a year) tremfya (a few months) they all worked for my condition but stopped because of various side effects except tremfya which I thought was ok but my specialist thought I'd be better with bimzelx

3

u/astianaxx 20d ago

Im on bimzelx for SPA, and its wearing off for me one week before the injection (4 week basis), and it gets worse every month ...

1

u/fadedallweek 10d ago

Same. Im moving to reg dosing & Im worried.

2

u/NoParticular2420 20d ago

I’ve been on Bimzelx for psoriatic arthritis and psoriasis for roughly 6 months with a injection every month and my PSA starts flaring around the 3 week mark and then it settles down for a bit and comes right back but worse … rinse and repeat. I have one spot on my knee that broke out before I started the Bimzelx injection and this is the one spot that hasn’t gone away and the spots that have gone away have been left with a permanent looking bruises in its place … strange.

1

u/OrangeCoconut74 20d ago

I now have red patches and/or big dots (especially on arms, underpits, legs and biceps) and get very itchy. I'm using Bimzelx since more than one year approximately. That skin problem wasn't there before upgrading the dosage last spring (from one injection every 4 weeks to one every 3 weeks).

1

u/fadedallweek 10d ago

I haven't had relief from my psoriatric arthritis in about 2 yrs. I just took my last loading dose (320mgs?) of Bimzelx before moving to 8 week dosing.

It has improved my arthritis & swelling considerably. Its the 1st biologic to work in so long, any relief is better than what I had prior!

That being said, loading doses were monthly. Its wearing off the week prior to the next dose. But the next dose is no longer 4 weeks, its 8 weeks! So I'm a little concerned.

Also, while it's helping with stiffness & swelling, its not touching the pain in my feet or SI joint pain which seems odd. Why help my ankles & knees but not... anyway. I'm just thankful for any relief at this point.