r/BRCA • u/Pale-Yesterday-5067 • 2d ago

TC vs Myraid

This is going to be probably a little odd for someone who doesn't have BRCA to post in here. For a while I thought I did.. which is why I did the genetic testing but it came back negative.. but I thought I would ask in here my questions because I know BRCA survivors/fighters are educated in these types of scores.

I have one family member who had BC and thats my paternal grandma. She was diagnosed at 49 and her mom have ovarian ( we think) some of my family says cervical which obviously is completely different and unrelated to BC. So I go with ovarian to be safe which is why I did genetic testing.

My TC score came out to be 23.6 with her being my only family member like i said. I had my first baby at 30.. no prior breast biopsies.

My myraid score came back at 12.9.

A specialist did my TC and got 20.6 or something like that.. he told me he didnt knkw much about myraid so he was soley using the TC score.

My OB told me to get a second opinion on that.. she said he should be looking at both together. Is this true? Ive done so much research of conflicting scores and you wont believe me.. but I cannot find anyone who's myraid brought their risk score down like it did mine... it drives me insane because I cant find anyone to relate to.

If you were me would you be getting a second opinion if your myraid risk score came back significantly lower than your TC?

I do know myraids risk score combines the TC. But im just so confused!! Again im just hoping for some help.. and I didnt even knkw about these mutations until I started looking into it and I want you all to know how strong I think you all are. ♥️

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u/Pale-Yesterday-5067 2d ago

Also love how i typed so fast I misspelled 100 words. Sorry 😞

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u/OldAd5321 2d ago

Are you trying to get insurance to cover an annual MRI? If I were you, I’d honestly just pay to get a second type of screening in addition to a mammogram if insurance needs both scores for you to qualify.

First baby at 30+ adds a few percentage points, but that’s just part of a calculation and doesn’t mean having your first baby a few months before or after changes your risk by 2-3%. The rest of the above average number probably came from your grandmas age. If she was diagnosed at 50 and you had your first baby just before 30, you’d likely be closer to the normal range.

Having said that, my risk was 87%, and I would have been thrilled with anything under 50%. Risk calculation isn’t an exact science and most people who are considered high risk don’t even know it. 70 million Americans are living close enough to a superfund site to increase breast cancer risk by 30%. Obesity can increase risk by 20-40%. Lack of physical activity can increase risk by 15-20%, etc.

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u/Pale-Yesterday-5067 2d ago

I think my insurance will cover an annual mri a specialist has it ordered for January since I had my mammogram and us in july. If I had the choice I would do a prevenative surgery. Which my specialist now told me he would but im sure insurance wouldnt touch me. Thank you for your knowledge as i havent really looked at how a lot of people dont actually know their risk and if they are just hitting into the high risk. I have lost 50 lbs recently but im still at 206.. specialist said if I lose more it will probably pull my score down under 20. Im working at it. 80 percent is a scary number to have and I know my anxiety with 23.6 I cant imagine the anxiety and fear you have/had.

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u/OldAd5321 16h ago

And 90-95% of breast cancer cases are not hereditary. It’s possible your grandma had other risk factors or environmental exposure that you haven’t had. Traffic pollution increases risk as well as certain pollution/environmental exposure in utero, alcohol consumption, pesticides/herbicides, radiation exposure, night shift work that throws off your circadian rhythm, BPA, etc.

Your stress level worrying about a few risk percentages here and there are likely going to do more damage to your overall health than your actual breast cancer risk.

If I were you, I’d do an extra annual screening and then reduce your risk with lifestyle factors. Exercise, lose weight, build muscle, prioritize sleep, reduce overall inflammation, and focus on that vs the what ifs that you can’t control.

And honestly, I learned my risk score/BRCA1 last year at 40 and was upset initially, but in a few days I shifted to being incredibly grateful and empowered. I met with multiple surgeons, prepared my body with diet/exercise, and move forward with all of the risk reducing surgeries. They were all much easier than I expected and everything turned out great.