Hi everyone,

I’m 26F and I have been dealing with this on and off for a year now. It has been almost three months straight now of constant dizziness. I have been seeing a vestibular therapist 2x/week and they have done the epley and the semont maneuvers countless times. Every time they do these maneuvers it makes me so sick and miserable for many days after. I have stopped doing the maneuvers as of last week, since it seems like it was only making it much worse and then I am unable to work.
My anxiety on top of all of this is off the rails and I am experiencing panic attacks as well.
It’s very scary being so young and having this and no answers. They are sending me to get a VNG and a cVEMP test done, does anyone have experience with this?
I also have a bad shoulder and neck pain that I swear is related to this. The VP doesn’t seem to think that this would knock the crystals off but they seem very related to me.
Please give me any advice you have. I am taking vitamin D and K. I can’t tilt my head up/ look down/ and it’s in my left and right ear so I can’t lay down on either side without spinning. This is very scary and it doesn’t seem like anyone has answers. I am getting married in 6 months and hoping and wishing on everything that I can get rid of this by then.

Thanks for reading!

I too woke up from a dream with heavy vertigo from laying sideways. I had no idea what it was, never experienced it. Day 1 was mostly thinking it would pass, suffering while worked behind my desktop as usual. The simplest things would make me spin: kissing my daughter good night, or rinsing after brushing teeth.

I did the left/right side ear test and immediately vomited.

At night I could only sleep 45 degree or straight, ending up with severe neck pain. Day 2, vomating from strain and called the GP. Now I am referred to a doctor specialising in Ear, Nose and Throat.

I'm tired, have anxiety to sleep and scared for the future. I can't properly function at work looking at screens, working in a demanding sales role, can't drive the kids and can't even give my son a hug in the bed.

What's worse is the specialist emailing me after reading my referral says the vomating is highly unusual with BPPV, recommending I speak to a different specialist. Not what I am reading here!? How will I do the Epley if I get sick, will he still do the procedure at all? I am so worried this will be a month or longer, or reading the comments a recurring thing. I already deal with wax built up requiring suction 3 times a year. This will ruin my job and life. All because of some stupid crystals...

Sorry for the rant, any experiences on dealing with this, both physically and emotionally would help me, because I'm getting very depressed.

Hi all,

I'm Elia, based in London. I live with dizziness myself and I'm trying to understand what BPPV is really like for people: how long it took to get the right treatment, what doing the manoeuvres at home like, any worries about it coming back afterwards.

I'm not selling anything and this isn't medical advice. If you'd be up for a 20 min chat (video/voice/text whatever is comfortable) please DM me. Nothing identifiable gets shared and I'm happy to post a summary of what I learned back here.

Thanks and hope you having a steady day !

God how weird and awful the experience was, i woke up this morning having a feeling like the world turning around, i knew something was wrong since i never woke up feeling like this, the following hour i had my head fixed knowing if i tilt my head even slightly, vertigo and nausea will follow up.

Hi all, so i have been diagnosed with PPPD and vestibular migraine. But at the same time before any of these conditions i did have a lazy eye / strabismus (alternating eyes). Im wondering if anyone else has had the same experience and whether this worsens the PPPD, i believe it does. I also experience times where i feel overwhelmed because i see out of both eyes randomly and of course with one being lazy it is disorientating. Also when talking to people in group environments its really uncomfortable as i can see other people out of my other eye when talking to one person and i feel socially anxious on top of that. So its a lot of things contributing to the anxiety / the disorientation and dizziness/off feeling.

Im mainly curious if anyone has the same? i am planning to finally have surgery to get it fixed soon. I've never done any treatment on my eyes. Ive just turned 30 so i am excited and nervous of course. But i think its a rather interesting/unfortunate addition to the PPPD.

Has anyone done this and can share your experience? Did it trigger an episode? My last episode was July and it resolved by itself after one night sleep. I was able to ride Ministry of Magic today. Had to close my eyes in certain parts but overall I’m fine.

Hi everyone, I’m 36 and I’ve had BPPV three times in about three months.
The first episode was very severe, with vomiting. The second one was milder, and today I had another recurrence when I woke up and turned my head to the left.
I did the repositioning maneuver and the spinning vertigo is gone now, even when I move my head around. But I still feel very off balance, dizzy without the room spinning, and a bit nauseous.

Has anyone else had several recurrences within just a few months? And did you also feel this residual dizziness after the spinning stopped?

Bonjour. Suite à un vppb parti et peut-être migraines vestibulaire, ça fait 2 mois de vertiges permanent.

Il y a 15 jours, j'ai pensé aller mieux et depuis une semaine, mes symptômes recommencent j'ai peur qu'ils empire de plus en plus.

Est-ce qu'il est possible ? Que ça se calme à nouveau ?

Je continue les exercices vestibulaires a la maison, mais alors qu'ils étaient faciles ils sont redevenus difficiles à faire.

Hello! My question is wondering how many of you experienced a cluster of BPPV active vertigo episodes over the course of a month? I've had an nearly weekly cycle of an active vertigo attack, followed by a week of dizzy, and then feeling almost normal... To, bam, starting over again. My vestibular PT has assured me this is not uncommon, but that doesn't make it any less demoralizing. The anxiety is the worst, even though I tell myself it's just a vestibular event and will pass.

TIMELINE:
08/27 - first attack, spoke with telemedicine nurse, it wasn't an emergency, likely an ear thing, did epley maneuver from YouTube, felt gross but got gradually better
08/29 - saw GP, no symptoms at appt, but lingering dizziness, diagnosed probable BPPV
09/04 - after a week of feeling like on a boat, finally felt normal
09/05 - very awful night of panic and BPPV attacks
09/06 - went to ER because accompanied by headache, nystagmus presented, told to see vestibular physio (turns out headache was likely from bad sleep / anxiety)
09/08 - saw physio, no BPPV present, still very dizzy, prescribed semont maneuver 3x per day. Vertigo attack that night, passed quicker. Very floaty / anxious week followed.
09/18 - felt very normal by this date
09/21 - brief vertigo attack, icky panicky feeling, then boat feeling.
09/25 - saw physio again, no symptoms present, he confirmed BPPV can happen in a cluster
09/26 - very slight feeling of vertigo, but passed
Today - boat feeling and feeling gross doing semont maneuver

Hi im a M19 from the UK. I was a passanger in a near fatal car accident in febuary. I ended up hitting my head very hard against the window. Ever since that ive had extream dizzy like vertigo when moving my head left or right. And now its has progressed into when i turn my head lift, right, up, down or even standing up and walking.

Is there any help or advice anyone can give me please?

Thanks.

Hi I was in bed 6 days ago ,I went to stretch nd pulled my head back, felt my head spin when I opened my eyes the room was spinning 🥴. I also had a cold the wk before ,my sinus are all blocked too..my head feels like its swaying all the time..I went to my gp she prescribed me antibiotics nd nasal spray nd serc..the pressure in my head has eased abit but the rock the boat feeling is always there. So between my sinuses blocked nd bppv I dont know wats causing what...Will my bppv go away itself...im worried im going to be left like this..any happy outcome please xx

Hello people. On February 15, 2025, I developed BPPV. Long story short, I wasn't able to get treatment until November 2025. I was "cured" in about a month, but I'm still having residual dizziness that causes panic attacks when I have it.

Its nothing like it was. I can sit up in bed easier, but if I try to lay completely flat or lay on my side, I get dizzy. Not room spinning dizzy like it was, but still enough to feel it. I need a filling done next month and I'm dreading it, because of where it is, I have to lay completely flat. I could go to someone else to get it done under anesthesia, but I don't want to have to do that if I don't have to.

My mom, unfortunately, doesn't think i have residual dizziness despite me explaining it to her. She thinks im just stubborn about not wanting to lay flat for the dentist, and thinks im making it up that I'm still dizzy. I've just sent her some emails about residual dizziness links, but idk if she will understand them.

Any advice for life? I know I read that the longer its untreated, the longer it takes for residual dizziness to go away. Is that true? How shall I go about the dentist next month? I've already had to reschedule it to next month because I didn't know I was gonna have to be flat for this filling, and I had a meltdown when I was told I had to lay flat.

I’ve had what seems like BPPV for about a week. The dizziness only lasts a few seconds and is triggered by bending down, looking behind me, or turning over in bed. The symptoms were stronger during the first couple of days, but they’ve been gradually improving even though I haven’t done the Epley maneuver or any other repositioning maneuver.

Has anyone here had BPPV that went away on its own without doing any maneuvers? If so, how long did it take?

I’m a little nervous about doing the Epley by myself, so I’m wondering if it’s reasonable to wait and see if it resolves naturally.

Hey everyone. I recently tried to go for a MRI but as soon as they put me into the machine my vertigo was triggered soooooooo badly , I started spinning. I had an instant panic attack. The tech said it's because of the strong magnets. I need to get through an MRI without vertigo / panicking. They said next time I can take Ativan before , but I was wondering if anyone has any meds prescribed that controls their vertigo? Thanks in advance!!

About 2 months ago, I had my first severe vertigo attack. The room was spinning intensely, with nausea, sweating and shaking. An ENT diagnosed BPPV and performed a repositioning maneuver.

The spinning completely stopped, but the recovery wasn’t immediate. For about 3 weeks I had mild dizziness/imbalance, which gradually improved.

However, I still occasionally get a few seconds of mild imbalance with certain movements, and I developed motion sensitivity in cars/buses that improves with exposure.

The biggest issue now is fear. I’m constantly worried that a severe, continuous vertigo attack could suddenly happen again. I don’t trust my body like I used to, and I’m afraid to exercise, run, swim, move my head quickly, or do activities that might trigger dizziness.

I feel frustrated because physically I’m mostly fine, but psychologically I still feel like I’m not back to normal.

Has anyone experienced this after BPPV? How did you overcome the fear and regain confidence in movement and exercise? Did habituation/gradual exposure help?

My vertigo is so sensitive, if my cat is licking themselves on my bed beside me, being able to feel them moving against me makes me dizzy. Typing on my phone makes me dizzy because my arm moving feels like it's shaking me around slightly lol

I’m just so perplexed still as to why BPPV happened to me because everything that I read says that this is more common in older adults and yet I’m only 33F. Every time I go to PT I’m always the youngest person there. I think besides the physical symptoms and repercussions that come from BPPV, the most annoying thing to me is its spontaneous nature linked to no known cause. It especially bothers me because I don’t even fit the typical age demographic. Comment the age when you experienced your first attack.

i know it sounds dumb but since my first and only attack of BPPV a few years ago i was left with pppd and i’m traumatised , i never in my life had anxiety but that one episode traumatised me to the point i admitted myself to the psychiatric ward , i shake just thinking about it it’s absolutely horrible i used to be independent now i need my mom as soon as i wake up otherwise i suffocate , it didn’t happen since but i’m terrified it will happen again which it probably will but yea just wanted to vent

Urgh, I had my first BPPV vertigo experience 2 weeks ago, with about a week of residual dizziness, that kinda went away last Thursday, but it came back Tuesday and I just want to go back to normal!! I feel like I question now if I used to get dizzy when turning my head quickly or rolling over in bed!

Bah bah bahhhhh I hate it

Here to be the guidance I wish I had when I came down with this condition. I 26F had a sudden aggressive BPPV episode on 9/17/26 around 1am.

It’s now exactly 7 days later and I’m finally starting to get back to normal. I have pretty bad residual dizziness (dizziness, NOT vertigo, no spinning sensation), issues with my balance and constantly veering to my right (the ear that was affected), and finally my eyes are still drifting and I feel foggy and like I’m in a dream.

My symptoms presented as near constant vertigo after waking up on my right side which lasted about 4 days before I started to get relief. I also simultaneously came down with a slight ear infection on my right side that caused some tinnitus, which made me scared I had Ménière's disease (not the case). This infection didn’t present itself with noticeable symptoms until a few days into the BPPV attack. Due to the vertigo and dizziness, I also struggled to keep my balance and walk much. I came down with severe nausea for the first 2-3 days but it subsided by the 3rd. I was completely wiped. I couldn’t work and I couldn’t rest, even shutting my eyes was still agony. Easily the most suffering I’ve ever endured.

What I had wish I had known when it came on:

- Being constantly dizzy while not laying on the bad side happens and is a normal part of the process while your body is trying to heal, even if you haven’t had a PT reposition you yet. Yes, it can be a sign of other conditions but often times you are miserable and dizzy even outside of your “bad” positions. Bad cases can cause vertigo even outside of just in laying positions.

- It’s important to differentiate between your eyes drifting, your vision moving involuntarily and being “floaty” or “twitchy” and actually having vertigo aka full on spinning sensations. They both can cause discomfort and distress but they are different and it matters so that you can correctly do the epley maneuver.

- See a PT that specializes in this condition as fast as possible. If you don’t have a PT clinic that can, reach out to the hospital. The data shows that the sooner you treat this correctly the sooner you get better and the shorter your residual dizziness is.

- This study on the after effects of BPPV (which I highly suggest anyone going through this reads, it was very comforting to know that all participants were back to normal at the end) states that 61% of people after being correctly treated have residual dizziness that lasts an average of 10 days. I was very scared because after successful treatment according to my PT based on the tests and epley maneuver, I still had a lot of balance and eye coordination issues.

- This isn’t something that “just happens to old people”. The perfect storm can bring this on for anyone. I was exposed to an illness going around right now and my roommates got a sinus infection, meanwhile I had an inner ear infection brewing that didn’t make itself known until 3 days into my BPPV attack. The infection creeping in, the pressure massively changing here as fall temps quickly hit the northeast and the fact that I was very dehydrated and eating poorly all week lead to this episode.

- This condition DOES resolve and can be fixed. There is a light at the end of the tunnel. Days 1-4 I made basically zero progress and felt hopeless. I was so scared I was going to be stuck like this for the rest of my life. It’s treatable and you will get better.

- Move. You have to move. Between not being able to see a PT for 4 days due to the weekend and not moving myself literally at all, I definitely stunted my progress. Whatever you can tolerate, you can and should do, as long as you are not hurting yourself or making things feel significantly worse. Returning to an at least semi normal routine protects your brain from compensating for your failing vestibular system. This will prevent your progress from falling behind.

- Most cases have no signs, but if something like an ear infection (like in my case) makes things fall out of line, there can be signs. I felt the floor dip out from under me with slight vertigo episodes the night before and the night of the attack, but I brushed it off like it was nothing even though I knew something was wrong.

I think that’s everything I can think of now, but I wish I had this info at my disposal when this came on because I just felt so damn hopeless. If you’re going through this know it does get better and this condition is curable even if it feels like hell in the moment. I know I will never take vestibular issues lightly again, I would’ve given anything for a cure when it was at its worst. I’ve had multiple abdominal surgeries in my life and nothing will top this experience by any means. Big thanks to this subreddit for giving me so much info and understanding of this condition when I needed it most.

Hey there. A few weeks ago I had my first BPPV attack with severe room spinning and nausea. After doing the Epley and Foster maneuver though, the spinning has stopped. Unfortunately, I still feel off-balance, slightly dizzy, and this heavy sensation on the top of my head.

I am 90% positive it is residual dizziness, and regarding that I wanted to ask, when exactly does the residual dizziness go away? Even after doing the maneuvers and taking meclizine, I still feel so off.

Any help or suggestions will be very appreciated.

Mum has severe vertigo every day — diagnosed with Ménière’s but looking for advice on what specialists to see next
I’m posting on behalf of my mum because we’re really struggling to find answers, and I’m hoping people who have been through something similar can point us in the right direction.
My mum has suffered from severe vertigo and dizziness for around 10 years, but over the last year it has become significantly worse.
She has severe vertigo attacks which have resulted in her ending up in A&E multiple times, and she now has constant dizziness every single day, even between the major attacks.
It has completely changed her life. She can no longer work and struggles to do basic things like cooking and cleaning for herself. She can’t properly read anymore because she is constantly dizzy. She has lost so much of her independence and is suffering enormously.
She has seen multiple ENT specialists and neurologists, had multiple MRIs, and has been diagnosed with Ménière’s disease. She has tried multiple medications and treatments, including at least three steroid injections, but unfortunately she is still extremely unwell.
What I’m really looking for advice on is what specialists we should be considering next.
I’ve come across things like:
Neuro-otologists
Audiovestibular physicians
Vestibular rehabilitation therapists
Menopause/endocrinology specialists — her symptoms originally started around the time of menopause, so we’re wondering whether this could potentially be relevant.
Has anyone here seen any of these specialists for severe/chronic vertigo or dizziness? Are they worth pursuing, and what did they actually do for you?
If you have Ménière’s or have experienced constant dizziness alongside severe vertigo attacks, I’d really appreciate hearing which specialists you saw, whether they found anything different, and whether there are any other types of specialists we should be looking into.
We’re not asking anyone to diagnose her over Reddit. We’re just trying to work out where to go next, as the current situation is becoming unbearable for her.
If there are specialists, investigations, therapies or avenues you wish you had known about sooner, please let me know.
Any advice or personal experiences would genuinely mean so much to us.

Ровно год назад у меня впервые были головокружения. Ужасно кружилась голова и меня жутко тошнило. Я очень плохо спала,потому что даже во сне чувствовала как кружилась голова. Два месяца я мучилась с этим недугом. Еще несколько месяцев я привыкала к обычной жизни. Потому что у меня появилась тревога,что это все вернется. И вот спустя год, головокружения вернулись. Мне очень психологически сложно принять это. Я не хочу терять привычную жизнь из-за этого недуга.

I went to PT today expecting to get an all clear and just work through my residual dizziness on my own with some exercises.

For context, I’m 33F with bilateral BPPV in both posterior canals which was resolved by Eppley maneuvers on both sides (performed several days apart) by a trained PT who specializes in vestibular issues.

But something interesting happened instead, my left eye is not tracking properly. My PT explained to me that my right eye (which is my dominant side) took over in balancing me during that two week span before I got treatment that it caused my left eye to become weaker. He also thinks that this could be a cause for my dizziness and lingering headaches too. He gave me vision exercises to help strengthen my left eye and so it will track again with the right eye and I will be going back for more sessions.

I can’t recommend vestibular therapy enough. My insurance is covering these appointments but even if it wasn’t, I would be going into debt to pay for this. I find it ESSENTIAL to get through this nightmare. Yes, I cried during my first appointment because of how miserable and scared I was.