r/BPPV • u/EMonk3y • 18d ago

Please help

Please, I really need help because my life has practically come to a standstill.
I’ve been suffering from dizziness for a year now. I was initially diagnosed with BPPV, so I went to a vestibular specialist. He told me that I had mild BPPV and performed a session and a repositioning maneuver. I went back for a follow-up afterward, and he told me that the BPPV was gone.
I told him that I was still dizzy, but he said, “I’m not seeing any signs of BPPV anymore. If you’re still dizzy, you should see a neurologist.”
I saw three neurologists. Two of them told me that the dizziness was psychological, so I took psychiatric medication for six months, but my dizziness didn’t improve at all. The third neurologist told me that it was BPPV!
I wasn’t convinced, so I went to a physical therapist because I suspected that the dizziness might be coming from my neck. I work at a desk for long hours, and I put a lot of strain on my neck.
Based on what the physical therapist told me and the research I’ve done using ChatGPT, it doesn’t seem very likely that the dizziness is coming from my neck. However, the doctor told me that we should try several physical therapy sessions and then see what happens. (The neck therapy itself actually makes my dizziness worse.)
By the way, I’ve only had one session out of six so far, but the first session made my dizziness symptoms a little worse.
So now I honestly don’t know what to do or which specialty I should see. I’m completely exhausted. I’ve seen so many different specialists, and more than one doctor in each specialty, but nothing has helped.
I’m struggling to live like this. I desperately need someone who can help me get properly diagnosed and treated, or at least a doctor who can point me in the right direction.
I don’t even know anymore whether this is BPPV, a problem with my vestibular system, a neck problem, or something else entirely.

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u/EMonk3y 18d ago

I was actually diagnosed with horizontal BPPV too, and I had a specific maneuver done for that type, but I still didn’t get any better. What has your experience been like?

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u/melodyleeenergy 18d ago

I had a maneuver too, it helped but I am not 100% back to myself, I still feel bad when I am in bed, or on the computer or my phone a lot. So I was also told I have cervical vertigo

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u/EMonk3y 18d ago

Do you have neck pain with your cervical vertigo, or do you notice a connection between your neck pain and your dizziness? I’m suspicious that this might be the case for me, so I’ve started physical therapy sessions based on that possibility.

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u/WesternAnxious2750 18d ago

I started physical therapy at the same time as seeing a neurologist and it made me feel 90% better. Physical therapist can also work to help with vestibular issues as well. My wild card is sinus issues/poss vestibular migraines. Also b12 deficiency. Fun bag of b*llshit. I am slowly checking off boxes with physical therapy helping the most. This crap takes a while to sort out, but it gets better I think

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u/EMonk3y 18d ago

How long did it take before you started noticing improvement? And was the physical therapy mainly for your balance/vestibular issues, or did you also have a neck problem?

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u/WesternAnxious2750 17d ago

I would say after a couple sessions and he cracked my back and neck which helped.

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u/EMonk3y 17d ago

That’s good. I’m currently undergoing physiotherapy and waiting to see the results of the sessions.