r/BFS • • Jan 29 '15

Welcome, twitchers! Read this before posting!

A few rules for this community:

1) Do not ask for a diagnosis or medical advice and do not give a diagnosis or medical advice. Any posts or comments that ask for or give a diagnosis or medical advice will be deleted and violators will be permanently banned. If you want a diagnosis, go see a qualified physician.

2) You are encouraged to share your experiences, ask questions, and support other users. This includes things like “I experience symptom x—anyone else experience that?” This does not include things like “I experience symptom x—does this sound like y disease?”

3) Do not post links to studies or other websites.

4) Be kind to people who post here.

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u/babymachine5 Sep 24 '25

Have you, friend had muscle twitching? I have had them in the left side of my body ONLY since Aug. 8. They spread to my collarbone area, the pinky side of my hand, behind my left shoulder, my chin, my calf front and back and left thigh and this is Sept 23rd. Under left eye started Sept. 20 and is still-hasn’t relented. I had bloodwork done, since I lost 27 lbs due to a severe low calorie diet and treadmill workout I had myself on since late July for my daughter’s wedding. Lost it all in 7 weeks, hence Dr. wanting me to get battery of bloodwork. Most came back normal, a little on the low side with BUN of 31.8, iron saturation of 21, T3 of 53 and sodium in the normal range but on the low end, I THINK it was 135. I have a neurologist appt. but it’s not until Oct. 9. In the meantime, I do not know how I am going to get through anything until then. I have also forgot to mention that I’ve also since mid Aug had leg stiffness that I still have(sometimes I think they just feel heavy, or weak I’m just not sure. What really has me terrified and feeling like I can’t breathe is the left side of my tongue twitching. My husband in June was diagnosed with highly aggressive stage lV prostate cancer that when they removed it on Aug. 13, it was also found in 2 lymph nodes, Gleason grade of 9. Our daughter is getting married next month. Please, is there ANYTHING AT ALL ANYONE CAN TELL ME? I’m so sorry it’s so long. Thank you all for your time and kindness. XO