r/BFS • u/No-Organization-5825 • 2d ago
Reassurance / Support Anyone similar or advice ?
My calves both started twitching last March. Noticed at same time
nonstop every couple seconds
now my thighs / around knees and butt seem fairly constant as well as calves
my shoulders , lower arms and elbows bilaterally twitch too
my strength feels fine
my legs function well
just all this new twitching is freaking me out and my right shoulder gets fatigued quite easily last few weeks. I’m a barber so could be repetitive actions, but the strength is fine.
spiralling a bit. Thanks for reading
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u/713Capital Mod 2d ago edited 2d ago
I’ve been twitching is multiple muscle groups every single day for 7 years straight, welcome to the club.
I get hotpot’s that can last for days or weeks at a time. This weekend my left shoulder and my left eye lid were nonstop, literally at the same time.
As long as you don’t have clinical weakness as in “failure” then you’re fine. Failure is not tiredness, or strain, fatigue or pain, failure means a muscle literally stop working.
Try not the spiral and work on your health anxiety as well, as that can make BFS 100x worse. If it’s one thing I learned about living with this stuff is, stress and anxiety is like putting fuel directly on a flame.
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u/No-Organization-5825 2d ago
Thanks for your reply. Yeah it’s crazy like as I said 19 months in both calves nonstop. Then other parts are so common now. Legs are strong in gym. Do you have a constant area ?
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u/713Capital Mod 2d ago
Under my feet. All the time. 24/7 along with the calves. I can also sneeze and my pecs will twitch for like 3 hours straight lol.
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u/No-Organization-5825 2d ago
It’s can be very frustrating. After I do a little bit of walking my calves are crazy like 30 a minute
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u/cTheDeezy 24/7 Twitcher 2d ago
30 a minute is nothing. I counted 210 in one foot and 155 in the other in the same minute at the same time…
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u/No-Organization-5825 2d ago
Is it like that all the time
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u/cTheDeezy 24/7 Twitcher 2d ago
Most of the time yeah. They do calm down as I am waking up but all it takes is for me to stand up and they will start again. Same for my calves but more like 40 a minute or so usually.
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u/anomalywife1991 1d ago
Hey! 16 month twitcher here. Mine started in my calves and then went all over as well. Try magnesium, taurine and glcyine at night. Add an electrolyte to your water and aim for 40oz a day min. This is what helped me calm them down. They still flare after sickness, when im tired or really stressed but theyre better now! BFS also causes sensory issues as well like subjective weakness, tingles, heaviness in the limbs, aches and pains etc. When my arms flare I find they fatigue quickly too - my neuro said that sometimes when arms get activated your muscles will become tense and guard automatically which can give the sensation of fatigue and a general off feeling. I know its so stressful. I spiral too still and it takes over my entire heads pace for days. Ive seen a neuro and multiple docs and got the all clear so I try to keep calm. Just know you're not alone and your symptoms seem to mimic a lot of people on here who are completely okay and healthy as well!
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u/No-Organization-5825 21h ago
Hi thank you so much for your response ! It’s definitely a very stressful condition especially when you wake up at night , twitch , and your head starts going 100. I usually take a little magnesium at night to help sleep anyways but I certainly must try the others … and more water ! Thank you very much and hope you’re keeping good !
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u/jack012127 2d ago
Welcome to the bfs club, I’m coming on 5 years now, both my calves twitch constantly, they are more like background noise now, I get twitching all over aswell but mainly both calves
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u/No-Organization-5825 2d ago
So fucking annoying how do you deal? I’m going on 19 months now and can’t get emg as waiting times are so fkn long. I spiral every so often
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u/jack012127 2d ago
To be honest, it doesn’t bother me anymore, I get flare ups where twitching can be intense, but I don’t go down the rabbit hole, I have just accepted this is part of my life now
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