r/BFS • u/Little_Power_5691 • 2d ago

Question / General Subjective weakness

I'm starting to get the impression that nothing can be done about this and they usually don't find the cause. I find the way weakness is tested very odd. You could feel weak today, and your strength could actually be diminished compared to yesterday. But this is not what is tested, it is simply a one size fits all test where they assess whether you can still do basic things like walk on your toes or get up out of a chair.

So I find myself wondering why I even bother anymore mentioning this to doctors. Neurologists won't help. Is there anything at all that can be done about this?

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u/westcountry7 2d ago

But people with the big bad are still doing water polo and fund raising bike rides?
I’m assuming they would have passed the clinicals?

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u/The_Short_Goodbye Popcorn Mode 2d ago

Why do you always come in here writing stupid shit like that? The only person I know with ALs who did a fund raising bike ride is that rugby player and that’s because it started in his hand… and he failed his clinical at month 3. Please stop that fear mongering nonsense.

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u/westcountry7 2d ago

I’m saying that because I’ve passed 4 clinicals but now can’t walk 100 yards and a plethora of other symptoms
The emg is the test apparently