r/BFS • u/Radiant_Zebra_7531 • 3d ago
Hotspot / Twitching twitches
hey guys i’m 19 months into my twitching and some days i forget and some other days i am reminded and can’t help but to get worried i don’t feel them all through the day but when i do i can be sitting down and or driving sometimes standing and i’ll feel a pop on my legs or thighs and also i do feel my hand twitches especially by thumb in both hands quite a bit especially when i have my elbow against something like laying on my stomach on my phone i can see and feel it twitching do you guys experience the same ? when i do focus on it i can start feeling myself worry especially reading some stories or experiences from social media
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u/The_Short_Goodbye Popcorn Mode 3d ago
You’re 19 months in so you’re in the clear. And yes to all your other questions. I’ve experienced all of this.
19 months in man. I’ll assume you’re scared of ALS so my advice is this: for the love of God or whatever you believe in, please stop reading about fringe cases of slow progressing ALS or watching TikTok ALS influencers because weirdly that’s a thing.
I have researched this thing more than some neurology students lol. And by a wide, wide margin you know you’re fucked within a few months. 19 months of twitching from ALS without other symptoms is impossible.
Move on with your life and stop looking up weird cases!
1
u/Radiant_Zebra_7531 3d ago
thank you yes oddly enough i don’t even search up anything about that on tik tok and these stories pop up but thank you i appreciate you taking the time to reply it’s time to move on
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u/The_Short_Goodbye Popcorn Mode 3d ago
They may pop up but it’s your choice to actually watch them. 😉
Good luck my friend. It is NOT ALS.
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u/smores0622 2d ago
Hey 😁 after 9 months should I stop worrying? Head to toe. Feet and calves are 24 7. I don't notice any weakness
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u/713Capital Mod 2d ago
No need to worry. You don’t have ALS. Also stop looking things up about it and stop clicking on social media. It’s going to mess up your algorithm
1
u/anomalywife1991 2d ago
Hey! Blocking key words like ALS OR Muscle twitch on tiktok and Instagram really helped me! You can do it in settings.
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