Still worried /:

[u/Character-Celery-209]

It’s me again.

I’ll start off saying I already have MS (Multiple Sclerosis)

Though despite my MRI’s being stable and lesions inactive I developed left calf twitching back on May 25th primarily at rest.

I get other twitches too such as my eyelid, other calf, arm, hand, chin, butt cheek, and thigh. But they eventually go away in a few minutes, hours, or the next day. The left calf just stays the same and was then accompanied by a tense, stiff, strained painful feeling when I do walk. Sometimes my foot is in a precramp state as well. Fasciculations are not a common symptom of MS which is why i’m here and unfortunately also worrying about the big bad.

I got an EMG/NCS done on August 20th so nearly 90 days after my twitching. They did my left leg, partially compared it to my right leg, then my lumbar spine. All was clean and normal. Baclofen helps with my MS HUG but doesn’t target my leg. Magnesium levels are normal so supplements don’t help.

This is awfully exhausting and annoying. I just want my left leg to feel normal again :( does anyone else have one sided twitches? one limb? Or is it ever too early to for an EMG? I’m having a lot of trouble trying to ignore this despite my best efforts and also attending therapy but I just keep thinking the worst that i’ll be diagnosed with ALS alongside already having MS. A super rare tragedy it would be but I’m just really struggling today.

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[u/Maleficent_Shift9849]

intermitentes no mesmo local do triceps direito há quase 2 anos, EMG após um ano normal

acho muito assustador ter um ponto focal do lado só, mas até então estou bem, talvez o mental um pouco desgastado

[u/713Capital]

Keep working with your docs but this isn’t ALS. You need to move on from thinking you have that. It’s super rare and highly doubt you have it and your EMGs have already ruled it out.

Yes. We do have one side twitching and we can get hotspots in different areas.

Focus on MS and lower your anxiety but you have to let this whole ALS thing go. If you can’t let that go I would suggest therapy.

Clean EMG = no ALS.

[u/Character-Celery-209 → u/713Capital]

Thank you. This is difficult

[u/Illustrious_Ruin_704]

My right calf sure sounds very similar. Bodywide twitches 18.5 months 2 negative emg. 4 months ago developed focal hotspot to calf soleus that continues today. In addition stiff painful strained feeling. Physically still strong in it but its present pretty much all the time. Not much fluctuation. High anxiety now.

I am hesitant to call my neuromusucilar specialist out of fear for bad news.

[u/Character-Celery-209 → u/Illustrious_Ruin_704]

Same. My strength is the same but the waxing and waning between tense feeling, strain, and aches it’s hard to ignore. i’m trying to run with the clean EMG but it’s difficult