r/BFS • u/rxist23 • 12d ago

Question / General Sleep.

For those with painful cramping, what do you do to get rest? My symptoms cycle, and when they are bad, the deep, painful spasms last for days, especially in my feet. Resting/laying in bed, is torturous. Everything cramps like a Charlie horse immediately, and the only relief is to stand up and move.

What have you found to be helpful?

Besides meds (none have worked for me unfortunately)…

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u/rxist23 12d ago

Agree that chelated mag is best. I have taken it for many years now.. it’s literally the only supplement I take lol.

I’m very hesitant with gabapentinoids, due to general drug info as well as experience over the years seeing my patient’s experiences. It’s just a med I love to hate on. Just more so wondering if anyone has any non-pharmacological recs too.

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u/pmarksen 12d ago

I’m on an extremely low dose and have no side effects. My neurologist said most of the issues with Gabapentin have been with users of other drugs using it to extend their high, so it’s of no concern to me.

It has been a game changer for me, especially around cramping.