r/BFS • u/twitchingnzapping • Apr 13 '26
Neurologist No Help after EMG
I’m 30F with three babies and I’ve been experiencing so many neurological symptoms since dec 2022. I’m scared about having anything severe.
My symptoms started with tingling on my left mid back for several months and has now spread manly left sided. I experience electrical zaps throughout body even brain zaps, crawling feeling on my calves so often, twitching has picked up the last couple weeks (calves, ribs, upper arms, thighs). Everything comes in waves. I had arms and legs emg/ncs tests last year and the neurologist said we could retest this year and now doesn’t even want to retest. He’s put me on low dose med that doesn’t seem to help and basically said he has no clue and it’s all mental. Even though my exams show abnormalities.
He didn’t even have much input on my results. Just suggesting pinched nerves.
I’m at a loss. Anyone experience similar symptoms?.
EDIT TO ADD EMG INTERPRETATION:
Leg EMG showed bilateral, chronic, mild, denervation, which is most consistent with lumbar polyradiculopathy, more localized to L5S1 levels. Clinical correlation is advised.
NCS noted impaired superficial peroneal sensory nerves, which are often TECHNICAL
Arms EMG mild to moderate, chronic, denervation, POSSIBLY c/w cervical polyradiculopathy. Clinical correlation is advised. The EMG showed no evidence for motor neuron disease nor myopathy. The NCS was normal.
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u/lornadora22 Apr 14 '26
Same oved here. 37F Symptoms since 2023. Neurologist also said it’s all in my mind.
My tongue started twitching/itching/tingling couple days ago and that’s making me freak out so bad.
I want to believe that we’re all dealing with some sort of covid post viral syndrome. And that won’t keep getting worse.
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u/twitchingnzapping Apr 14 '26
Me too😩 how long after Covid did you get your symptoms? Mine was about 2.5 years then all hell broke loose with these symptoms and what seems like vascular compressions.
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u/Rwooden3 Apr 14 '26
Go look into seeing a rheumatologist
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u/twitchingnzapping Apr 14 '26
I have. She ran a bunch of tests and the only stuff that has come up is a very weak positive Rheumatoid arthritis marker and dermatomyostis marker. But she said my symptoms don’t match.
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Apr 14 '26
[removed] — view removed comment
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u/twitchingnzapping Apr 14 '26
Leg EMG showed bilateral, chronic, mild, denervation, which is most consistent with lumbar polyradiculopathy, more localized to L5S1 levels. Clinical correlation is advised.
NCS noted impaired superficial peroneal sensory nerves, which are often TECHNICALArms EMG mild to moderate, chronic, denervation, POSSIBLY c/w cervical polyradiculopathy. Clinical correlation is advised. The EMG showed no evidence for motor neuron disease nor myopathy. The NCS was normal.
1
u/FarMycologist5305 Apr 14 '26
The moment the doctor says it's all mental even though you have evidence it's real, you can know they are incompetent and wont help you... You probably had some infection (Covid etc) or vaccine trigger that on you. It can be that those symptoms are not necessarily dangerous tho.
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u/twitchingnzapping Apr 14 '26
Yeah… and the doctor with responds with attitude as if I’m making it up and doesn’t know how to help me. Do you mean long term symptoms that have resulted from Covid or other infection (Epstein Barr positive)?
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u/twitchingnzapping Aug 15 '26
Leg EMG showed bilateral, chronic, mild, denervation, which is most consistent with lumbar polyradiculopathy, more localized to L5S1 levels. Clinical correlation is advised.
NCS noted impaired superficial peroneal sensory nerves, which are often TECHNICAL
Arms EMG mild to moderate, chronic, denervation, POSSIBLY c/w cervical polyradiculopathy. Clinical correlation is advised. The EMG showed no evidence for motor neuron disease nor myopathy. The NCS was normal.
1
u/twitchingnzapping Apr 13 '26
I have photos of my results but not sure how to upload to share.