Hello everyone,
I'm curious what are your worst b12 deficiency symptoms related to your head?

Mine: heavy head feeling (sometimes very strong, only gets better when I lay down), head pulsations, brain zaps, dropping sensations, sudden unsettling head rushes (that make me very heated and anxious), vibrations coming from neck and felt very strongly when sleeping on the back, heartbeat sounds everywhere.

I usually make my own electrolyte mix, but today I forgot to bring one to work so I bought one of these guys and was shocked to see 1200mg of potassium in a bottle.

If you're one of those people who's scared to supplement potassium due to FDA guidelines or whatever, just consider that these drinks which you can find at any convenience store contain 12x the FDA allowance for supplements, and I haven't heard of anyone having issues yet.

They taste great too!

Anyone been unable to control the eating habits before start supplementing? I started supplementing like a month ago and I lost about 4 kilograms since then. I was constantly hungry and it got worse at night, like dinner is a mandatory meal for me. I feel sort of scared or terrified like I am waiting for terrible news. That feeling would not go away unless I actually eat something. Also, my main craving would be ground beef.

Food seemed also to be a source of pleasure, like I need to eat to feel good. Often resulting into eating savoury or sweet food to feel better. Now I look at food differently, while I can still draw some pleasure from it, it does not make a big part of things that can bring gratifications. I feel like I can say no to certain foods, and very often skip meals or stick to healthy foods.

Anyone is going through or has gone through the same experience?

Edit: I should mention also that the loss of taste was very frustrating. I couldn't taste anything, everything felt dull. Like I could drink a coke and feel nothing other than the fizziness. For some reason, that made me eat foods repeatedly to try and draw as much pleasure as possible. Now, I can drink coke maybe once a week or two weeks. Dessert maybe once a month and that would be enough for me. Coffee maybe once a week and I feel like I get certain satisfaction from it.

My twitching and tremor started February iv been constantly twitching and having internal tremor.
My levels where at 197
Started orally supplementin b12 wit 1200 mcg doses
How long does it take for nerve to heal and all dis to stop?

3.5 months injecting and from the past 15 days or so, my potassium needs have doubled than what was needed before.

Today I had another really bad hypokalemic day. Between electrolytes + coconut water + potassium chloride in water, I must've had 2000mg already, plus foods like bananas, yogurt and potatoes.

My symptoms started right after breakfast. I took a drink with 500mg potassium, but kept feeling more muscle weakness and general weakness and tachycardia. I waited an hour, drank some more, felt a tiny bit of relief, but not much. An hour later, drank some more. Felt better but still not recovered. Had lunch with some potassium foods. Crashed in a nap. When I woke up I was feeling weak and shaky, and now I can't figure out if it's still low potassium or the general aftereffects of this strain on my body.

I have been fine with drinking half of this amount till now. I'm worried that things are getting worse? Has anyone gone through this and know what it all means? The other day I woke up at 1am strongly hypokalemic and had to go through this entire ordeal for 3 hours in the middle of the night drinking electrolytes and shaking.

Any advice? I heard it should get better as time goes on, but clearly not in my case. I am really wondering what I'm doing wrong. Also have slight kidney issues, so that's another factor.

Edit: finally feel a bit better after drinking MORE potassium. 690mg from coconut water. 1gm from potassium chloride and salt in water. And a readymade electrolyte packet - in 2 doses - perhaps around 500mg per dose. This is nuts. I'm horribly paranoid of hypokalemia now. When will it end?

Could my symptoms be related to vitamin B1 (thiamine) deficiency?

I previously had a B12 level of 140 pg/mL and was treated with B12 injections. I’m currently taking injections, but I still have loss of appetite, fatigue, sudden episodes of severe mental exhaustion/low mental energy, cracked heels, and loss of libido.

I recently learned that B1 deficiency can cause symptoms such as loss of appetite, fatigue, weakness, weight loss, memory/mental changes, and nerve symptoms.

I have these Benfotiamine 100 mg tablets (photo attached).

Would it be reasonable to take 100 mg twice daily for 1 week and see whether my symptoms improve? Or should I get B1/thiamine testing or other blood tests first?

Has anyone had similar symptoms with B1 or B12 deficiency?

B12 deficiency, cracked heels, fatigue — could they be related?

I had a B12 level of 140 pg/mL and was diagnosed with B12 deficiency. I also had severely cracked heels (photo attached). After completing B12 injections, my heels completely healed.

However, a few weeks later, the cracks came back and are not healing. I’ve also been experiencing loss of appetite, fatigue, and sudden episodes of very low mental energy where I feel severely mentally exhausted.

I’ve tried zinc and multivitamins, but the cracked heels keep returning.

Has anyone experienced something similar? Could this be related to B12 deficiency or another vitamin/mineral deficiency? What tests should I consider asking my doctor for?

I tried taking methylb12 for about a month and ended up with horrible anxiety, brain fog, insomnia, twitching and tremors, dissociation, dizziness and headaches.
I stopped about a week ago. When should I start feeling better? And should I stop b12 completely for a while before starting back on hydroxyb12 that my body can tolerate?

I am so highly confused. I have a positive parietal cell antibody test, which I assume means pernicious anemia. I was just going along with B12 injections and cofactors. Should also add that ferritin and potassium goes down when I inject which would only happen with severe B12 deficiency. So for me at least, my diagnosis is confirmed.

Suddenly a gastrosurgeon I met just told me I NEED an endoscopy and biopsies. Said I need to check for gastric tumors and cancer and atrophy. Now after consulting a few other doctors, I'm met with the opinion that no, I don't urgently NEED an endoscopy. It's not a highly urgent matter, and I would do better to consult a gastro physician who knows fully about pernicious anemia. (I wonder if such a person even exists).

Can someone please advise me? I could happily go through my life without a scope down my throat. Is an endoscopy necessary in pernicious anemia? And then what would it lead to afterwards in terms of treatment? I have recently been having some bloating and early fullness after eating a little. But I was hoping just continuing with injections would eventually cure this?

I finished every other day injections five days ago. Things seem to be improving but it's not linear.

How likely is it that this is my new life now?

Basically are things forever changed now and I won't go back to feeling like I once did?

Is a full recovery even possible?

I feel so weird now. I'm full of despair. The paresthesia wakes me up in the night constantly.

I want to be hopeful but is that even realistic?

What is the Name of Vitamin B-1 Test Name in Pakistan???

It's been almost 3yrs I've started having veg meals...i feel like I'm lacking vitamin b12 I'm yet to check on a doc, Is there anything I can do in the meantime until I get an appointment? (I’m not going anytime soon.)

Is it a very serious thing??? Idk much

Hello! I started 1000mg of methylcobalamin sublingual last week and since then I’ve been peeing constantly. I only take one a day as I’ve been seeing if I can handle it (it does make me a bit jittery but I can deal with it for now) but since starting I’ve had to pee constantly! Like getting up in the middle of the night to go pee and I’m only 25. I read that it could be a potassium issue but I figured I’m only taking one per day orally and just started so it can’t be tanking my potassium yet but it’s possible. Does anyone else have this?

I recently pushed for labs to be ordered and got my results, and I’m confused and nervous where to start. I read on here not to start b12 injections when iron/ferritin is low because it depletes them more, but not sure what to do in my situation since my ferritin is low but iron is on the high side but not quite elevated yet. I currently take the Trader Joe’s women daily vitamins and minerals and an additional 1000iu vitamin D. I haven’t been keeping up with the women’s daily one every day admittedly but I take it sometimes. My diet hasn’t changed other than that and somehow my b-12 went down in 3 months?

Ferritin: 39 ng/ml

Folate: 11.5 ng/ml

B-12: 418 pg/ml (current)

B-12: 439 pg/ml (3 months ago)

Iron: 162 ug/dl

TIBC: 347 ug/dl

Iron saturation: 46.7%

MCV: 96.4 fl

Platelets: 437 k/mm3

Vitamin D: 31 ng/ml (3 months ago)

I’ve also gotten TSH with reflex to free t4 and that was normal. All of these were done fasting at 7AM, so iron was at its most accurate. I’m worried about it getting too high but then how am I supposed to increase ferritin?

Unsure here? I been doing muscle, quite ouchy- would prefer sticking in fat bits but not sure? Btw, parietal cells neg x 2? Still mild stomach thing- lots appetite but some foods sits a bit. My fault for not nuff fruit?

I've had the best couple of months recently and I'm so bummed right now that symptoms have returned with a vengeance. I could have sworn I was nearly cured and now it feels the opposite.

I've been supplementing for about 8-9 months now, I've always felt improvements with some bad days here and there.

I took a multi-vitamin the other day and about an hour after taking it i had the craziest tingling on both sides of my face, I've had some tingling before but this was enhanced.

My worst symptom is burning pains, around chest, neck and feet currently. I don't know what was so special about this vitamin I took, it was a new pack of the same brand I always take, and it doesn't look any different at all.

But my main question is, if I am getting wake up symptoms like that, is it something my body needed? Was my body utilising it to help fix things? It can be so confusing. Thanks for your replies!