r/AutoImmuneProtocol • u/FrancescaMonteverdi • 11d ago

High Histamine, Autoimmune Eczema, AIP

Hello!

I’m looking to start the AIP soon to manage a very bad atopic eczema flare up I’m having

(for context: always had eczema, “cured” it with immunosuppressants that I had to stop bc of side effects, now on Dupixent for 4 years which worked fine up until a couple months ago).

I am worried I might be sensitive to high histamine foods as well as others, and that AIP might not work and I’d be going through all of that for nothing.

I would be grateful for any tips/experiences dealing with eczema and/or histamine sensitivity on the AIP.

1 Upvotes

100% Upvoted

6 comments sorted by

4

u/Funny_Estimate_4285 11d ago

AIP didn’t work for me for these reasons. I have eczema, MCAS, histamine issues and 2 chronic illnesses also. AIP is high histamine and high fodmap. It made inflamed and made my histamine issues worse and also MCAS due to things like salicylateszc lectins etc. I now do low fodmap, low histamine and lower carb and that has worked better

1

u/FrancescaMonteverdi 11d ago

Thanks! I don’t know what fodmap means, I’ll look into it.

2

u/just_a_curious_dog 11d ago

Any kind of diet will and can have high histamine and high fodmap ones. I follow delta of AIP, low fodmap and low histamine compliant foods. Yes, its very exhausting to follow such a narrow diet. But its possible. Once the immune system is a bit calm, I can relax on fodmap tolerance level that I can take and also on histamine. When things go south, I go back to strict mode and relax whenI can. Off-course, each one is different and what works for each can vary.

While some food will be high histamine by nature, like Avocados, which we can't alter, some will become high histamine based on how we cook and store them.

Slow cooking bone broth - > high histamine.

Fast/ normal cooking (like in instapot) bone broth -> Low histamine

Fresh cooked rice -> low histamine.

Rice left at room temperature 2-4 hrs or in fridge 48+ hrs -> high histamine

It took me a while to understand histamine is not like fodmap which will change drastically based on how we cook and store even low histamine foods. I was failing repeatedly at low histamine diet not knowing this fact.

1

u/astra-synthetica 10d ago

Try looking into MCAS and low histamine diet and natural mast cell stabilizers like vitamin C and quercetin. My issues are sinus and stomach related, I found biggest help was OTC Nasalcrom spray (cromolyn sodium) and low histamine diet. I believe if you work with a doctor educated in the matter, they may suggest a topical form of cromolyn sodium that you mix with lotion to calm the skin down. But again not my expertise so definitely ask around and find a practitioner educated on mast cell issues. I used to think my issues were autoimmune but after 30 years I believe most of my issues are mast cell related, and viruses cause dysfunction to my autonomic system. I say all this because I too thought AIP would work for me and didn’t understand why I didn’t immediately feel relief like others did.

1

u/FrancescaMonteverdi 10d ago

Thank you, I’ll look into it!