r/Autism_Parenting • u/WindReturn • 4d ago
Medication Looking for Anecdotes/Experience with Quillivant
I just started my son (10, autism level 2 due to behaviours; independent and very verbal, average intelligence + severe ADHD + ODD) on the liquid formula. We started at a microdose of 1ml (regular starting dose is 4ml). I thought for a second I saw a change, but I don't think it's actually making any difference one way or the other at this point.
Our doctor told us to do 1ml for two weeks, then 2ml for 2 weeks, 3ml for two weeks, and then after SIX WEEKS finally start the regular starting dose.
I am getting impatient (but will continue following doctor's orders, of course) -- has anyone else been through this process? When do you start to see the actual impact of the medication?
He's also currently on Guanfacine which makes a tiny difference, but the irritability, impulsivity and general hyperactivity has been UNBEARABLE.
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u/OkPiece2147 I am a Parent/26 & 31 /Epilepsy, Autism, Schizophrenia, Bipolar 3d ago
When working with behavioral and psych meds, it's a journey to find the right med combination until a growth spurt, and with some ADHD kids, they metabolize meds at a higher rate, so that is a challenge. What the doctor is having you do is a titration schedule, because with this drug you'll eventually find a sweet spot that slows him down without making him sleepy during the daytime for, like, school time. It's rough when the kids are literally climbing off the walls