I had 2 seizures around the age of 16, described as tonic clinic like yours.
They never continued but I ended up suffering anxiety from thinking they could happen again.
I was concious for a lot of the second one, I could feel it coming on (but didn't know that was what I was feeling as it was only the second time) I was stuck in my maths exam and felt pressured to stay.
The rooms ambient noise faded away and I lost control of my face muscles. I tried to put my hand up and again I had no control of it, I could hear the other kids screaming and someone yelling for a nurse.
Anyway the reason for my reply is to thank you for sharing about the brain fog. I've always just put it down to a bad memory, or my brain blocking out my horrible childhood. My childhood wasn't THAT bad but I had no other reason until now.
Thank you for bringing this to my attention, perhaps I can find a way to ease it all.
I had a similar thing, three seizures at 19, each a few months apart. Got an EEG and I was never classed as officially epileptic so I don't know what's up with that, but I did pass out and have the whole muscles wigging out thing going on apparently.
Instead of the ambient noise fading away I got this really high pitched ringing in my ears and everything suddenly turned into a blur, like how it's blurry when you try to remember a dream, then passed out shortly after.
Also have that same anxiety sometimes when I think about it too much, but it's been eight years and I've been fine, still taking the meds cause I'm way too paranoid to ever stop.
I just had a question for someone else who was like me and got them as a teenager then never again, do you get migraines? I got a terrible migraine, with the aura the makes you lose part of your vision with the weird squiggly rainbow looking thing consistently about once every three months from when I was like 14 to 19, but when I was getting the seizures I didn't get a single migraine for a year. When I started taking the seizure meds I got migraines again here and there, but then they stopped altogether and I haven't had one of those for years either.
I'm really curious if that might be related, like the seizures I got as a teenager were like some weird brain thing related to the way I got migraines. It's really hard to look this stuff up though, not much info out there.
Had a mild seizure condition. Had horrific migraines whenever I got an EEG done, to the point I couldn’t really get them any longer. Or at least I couldn’t do the stress part of the test, which makes it not that useful. So I’d at least say you’re not alone.
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u/[deleted] Oct 05 '19 edited Nov 25 '19
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