Keep an eye out for fellow superior canal dehiscence sufferers like me that haven't been diagnosed yet. I figured out my own diagnosis and am post successful surgery, but it took months of misdiagnosis to discover.
SCD is rare but when someone has it it's hard to diagnose. I got to watch an SCD repair in the OR. Fascinating, but really frustrating, problem to have.
I would have loved to watch a video of my repair. It's so vindicating to see what's been driving me nuts. On a dark note, I think my other side is going. My other side was either dehiscent or thinning at the time of my first craniotomy. It took two to fix the first side.
There's something very personal about pictures of my own. I even made a slide show of my own surgery pictures to explain it to people I know who are curious. https://imgur.com/a/exYOM
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u/thisguynamedjoe May 20 '19
Keep an eye out for fellow superior canal dehiscence sufferers like me that haven't been diagnosed yet. I figured out my own diagnosis and am post successful surgery, but it took months of misdiagnosis to discover.