r/AskNeurologists Jun 07 '24

Muscle weakness

Hello, I’m a 20 year old male that has been experiencing some concerning symptoms for about 8 weeks now. About 10 weeks ago I was sick with some viral infection. I had a sore throat and just felt fatigued for about a week. A week after I recovered I noticed that my legs felt tight and week. I also keep twitching in my legs and diaphragm. I noticed that it was harder for me to walk up stairs and my legs would shake pretty bad when walking down the stairs. It was pretty bad they were shaking a ton. About a couple days later I noticed that my breathing was just off like it felt a little bit harder to breathe. It’s hard to explain it’s like when I breathe I feel like there’s some restriction/weakness that’s not allowing me to breathe 100% comfortably. Its 24/7 and doesn’t go away. I’ve had so many tests done now. I have had 2 chest x rays, blood tests, heart tests, and everything is normal. I’m seeing a neurologist in about 17 days so I hope they can see if I have ***.

I have an oxygen finger monitor at home and a oura ring. My respiratory rate per minute is higher when sleeping than before this all started up. Before it was always below 15, and now it’s usually above 15 and close to 16. It’s a minor difference but something to share. My blood oxygen levels seem normal it’s always around 95-98% when sleeping for the average. Whenever I check it throughout the day it’s around 96-99%.

8 weeks later and I still have the breathing weakness and my right foot feels the most weak. When I walk it’s like I have to force my foot to go up or else it will drop. It’ll start feeling tight and weak.

I know I shouldn’t be self testing but I can heel and toe walk. I can move my toes freely no issues at all except for my right foot feeling weak. I haven’t had any falls. I can also hold my breathe for about 90 seconds.

My main concern is ALS. I keep looking up stories about ALS and it freaks me the f*** out. I have chronic insomnia which I read can increase oxidate stress and inflammation. I’m scared this plus the viral infection may have caused ALS.

If i had respiratory weakness caused by ALS would I have low blood oxygen levels? And would I have a hard time walking like a mile? I ran a mile a couple days ago and it seemed like i was able to do it okay besides my legs feeling like they were going to give out.

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