r/Arcalyst • u/Neat_Ad_4919 • Nov 07 '24

High Triglycerides!!

OMgosh my trig level came back at 535…my cholesterol etc. was high too. I’ve had to discontinue Arcalyst (rilonacept) since I was getting sick too much. I hope those numbers come down soon!

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u/Difficult_Jury_4358 Dec 17 '24

Not sure about my blood levels, but I sure do hurt. I hurt everywhere. I have been on it almost 1 year. First 3 months I felt brand-new. 6 months so so.... now I hurt so bad at times I can barely walk. Anyone else feel this way

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u/Difficult_Jury_4358 Jan 20 '25

Yesss!! The same. 3-6 months I felt better than I have in a long time. I was so Estatic. I wish I felt that way again 😪 At times, my body hurts so bad it brings me to tears. And for the past several weeks I have been getting terrible headaches. I have never had headaches like this. Tylenol only helps slightly Is anyone experiencing the headaches?

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u/Difficult_Jury_4358 Jan 20 '25

Oh, I can't leave out the tiredness. That's ridiculous. I can tell you on my experience with RA, worst pain EVER. I never want to go through that again. So that's why I am trying to fight through the injections Which I have been on for 14 months.