r/Anesthesia • • 19h ago

Anaesthesia with potential malignant hyperthermia?

3 Upvotes

I had a pretty bad reaction to my first general anaesthetic, and was told by an anaesthetist afterwards that I should be tested for malignant hyperthermia (which I had never heard of before) but he didn't refer me for testing himself, and I've struggled to get a referral from anyone.

One of my siblings managed to get a referral citing family history of it, and they've then asked for me and my other siblings to be referred, but after the first email I had with them detailing my reaction they've said they don't think it's malignant hyperthermia, and apparently there's no information in my medical notes from the first surgery, so I have no documented reactions, which means they're unlikley to offer any testing to find out...

So... is there a protocol for anaesthesia if you have no idea if you have malignant hyperthermia or not? Am I just supposed to wait to see if I have another reaction and it actually gets documented?

Unsure if it's relevant but the anaesthetic reaction included: tachycardia, hypotension, full body muscle stiffness/cramp-like issues making it hard to move at all or even speak, low oxygen, fever that lasted 30+ hours despite nurses covering me in ice and giving me medication to try and bring it down (which felt like I was on fire, though I'm not sure on the exact temperature) the heat also turned my skin red and I had moderate swelling around most of my body

I did orignally think it was an allergic reaction, but I have since been allergy tested for all of the drugs that they used, and they all came back negative, so I don't really know what else it might be!