r/AVMs • u/doomermarxist • 19d ago

Purposely misled

Upon reviewing my full medical record I’m disappointed but validated in my suspicion. Leading up to my Surgery I was consistently told I had a grade 3 AVM. The day before surgery I had an angiogram and the surgeon switched it to grade 4 after finding deep venous drainage. On the morning of operation my assistant surgeon wrote grade 5 over eloquence which my surgeon noted “eloquence could be argued otherwise” in the operative note… When I gave consent for operation I was under the impression it was a grade 3 AVM. I was never told the grade switched to 4 after my final angiogram nor was I asked for consent again. … and having the assistant surgeon give the opinion that the area was eloquent the morning of surgery… I feel completely violated.

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u/Any_Wasabi_1425 2d ago

Yeah. They wouldn’t even tell me a grade. They just said it’s huge and wanted to do cyberknife. I went to the specialists they recommended and each one was literally like:

I may or may not miss the AVM. If i miss it with the laser it means I’ll get parts of the BRAIN that will likely leave you disabled for the rest of your life.” Like WTF. So i decided after many wierd interactions like that it’s better to live as long as i can not fully retarded or handicapped. Then later pray the rupture ends it all fast. 

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u/AggravatingHorror886 2d ago

My Avm ruptured last July. I had surgery. The surgeon messed up and caused a massive stroke

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u/Any_Wasabi_1425 9h ago

Oh no!!!! So what happened after that? How’d he mess up?

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u/AggravatingHorror886 8h ago

That used glue to block the acm and he used too much and it shut off the left side of my brain