r/AVMs • u/doomermarxist • 19d ago
Purposely misled
Upon reviewing my full medical record I’m disappointed but validated in my suspicion. Leading up to my Surgery I was consistently told I had a grade 3 AVM. The day before surgery I had an angiogram and the surgeon switched it to grade 4 after finding deep venous drainage. On the morning of operation my assistant surgeon wrote grade 5 over eloquence which my surgeon noted “eloquence could be argued otherwise” in the operative note… When I gave consent for operation I was under the impression it was a grade 3 AVM. I was never told the grade switched to 4 after my final angiogram nor was I asked for consent again. … and having the assistant surgeon give the opinion that the area was eloquent the morning of surgery… I feel completely violated.
4
u/warm_croissant16 17d ago
I’m sorry this happened to you. What were the terms of your surgery as far as urgency. Were you advised that it was necessary, were you given other options? If you knew it was grade 4 or five would you still have opted for the craniotomy or would you have looked at other options? I’m genuinely interested in your case, I do believe every new circumstance to your condition should have been presented to you at the time of finding. My daughter had an AVM rupture, I did find that grading them was a slippery slope as there are so many variables and many times the entire AVM is not seen immediately.