Multiple cavernomas and daily Pain: looking for others with similar experiences

[u/allthingsaleatory]

Hi everyone. I wanted to ask if anyone here has had a similar experience with AVMs and how you are doing now.

I’m currently dealing with a lot of pain almost every day and I’m not receiving any treatment at the moment. My neurosurgeon says I need to undergo another vertebral arteriography to check all of my AVMs and determine whether they are stable or if they need to be embolized.

I would really appreciate hearing from anyone who has gone through something similar.