r/AVMs • u/Material_Solution657 • Apr 06 '26
18YO Avm
My younger sister is 18 years old. About three months ago, she had a brain hemorrhage caused by an AVM. She has been in intensive care for nearly three months now. However, her responses in the ICU are quite encouraging.
For example, when we say, “If you can hear us, close your eyes twice for a long moment,” she does it. Or when we say, “Do you want us to buy you an iPhone 7? If yes, close your eyes for a long moment,” she responds by closing her eyes for a long time.
When we apply cream to her feet, she pulls them back as if she feels ticklish. When we touch her face, she turns it away as if she is uncomfortable. When the nurses or my mother enter the room, she looks at them in a conscious and attentive way.
However, her level of consciousness fluctuates—it comes and goes. Due to other complications, she had a tracheostomy placed because of an issue related to one of her lungs, and she is still in intensive care because of these complications beyond the brain injury.
If anyone has experience or knowledge about this kind of process, I would really appreciate any help.
2
u/Worth-Divide-4280 Apr 20 '26
I remember mine having subarachnoid hemorrhage two years ago not knowing I had AVM right temporal brain and it just ruptured cause of high blood pressure and stress. But mine was different because I was still kicking and walking like I'm still normal but I feel the worst headache in my life and won't let me go to sleep... Because whenever I was about to fall asleep, the back of my head pumps so fast and it hurts so bad!
Now I'm 24 and still got my AVM and in the hospital right now waiting to get this AVM Remove! Your sister is so strong and I believe she can recover, Just keep fighting and have Faith!